Child with PANDAS Taken from Parents via Boston Children’s Hospital

In my last blog post I mentioned I was in a ticked off mood.. This is why..  I know since Sweet Pea came down with PANDAS I haven't been keeping up with my blog so it will take sometime to get you all caught up but I don't have that time and I think that is why I have stayed away from my blog, I just don't know where to start.. So if your lost I'm sorry..  but I now have two children Dx with PANDAS both Sweet Pea and Mr Man.. and we are 99.9% sure Little Man has it also.  but that is neither here nor there at this time...  

This story about this little girl has been all over the facebook and PANDAS world today and it is breaking my heart. 
Here is a blog that can tell the story.. read it 1st. 

 I am so sick over this.. I have been going from wanting to jump on a plane and punch some...

one in the face, to crying and fighting back tears... This NEVER should have happened and in a Childrens hospital none the less.. where doctors should be up to date on childhood stuff like PANDAS... UGH UGH UGH... I have two children Dx with PANDAS and at my daughters onset and worst of it all.. she refused to eat, she couldnt' wear cloths due to sesnory issues from PANDAS along with the extream spereation anxeity.. when I sought help from the Pedi he Dx her with OCD, high anxeity and a conversion disorder(his reason for the sensory stuff) a few weeks after that all heck broke loose... she stopped eating altogher, stopped sleeping, did nothing but scream and cry while she sat naked in the middle of my bed rocking back and forth she couldn't lean back on the couch or chair cuz she said it felt like people were stabbing her with a knife(though at the time she wasn't telling me this stuff just screaming her head off in pain) she couldn't sleep because laying down on the bed sheets put her in pain also.. she sat with her arms around her knees rocking back and forth just crying till she would get so tired she would passout and fall over, only it would only be for a bit because falling over waking up and feeling the stuff touching her had her screaming and rocking again... My husband wanted to rush her to the ER. he was worried she was going to dehydrate.. I fought with him, because I already had one doctor her Pedi trying to get her in with a psychiatrist, I just had this sick gut feeling if I took her in to the hospital in this state they would think she was crazy and want to admit her into the psych ward and I didn't want that for her.. so I fought with my husband... I was worried if they did that they would make me leave her and she was already having complete melt downs if I took two steps away from her, I couldn't do that to her.. Only after 3 days of this I was getting worried also and was trying everything to get something into her.. on day 3 of this.. she fell asleep.. it was only for 30 mins but it was sleep after 3 days of none(for both of us) when she woke up she was running a fever.. So I did get her into the pedi's office.. which was no easy task for a child who wouldn't put cloths on and I had to force cloths on her(even through they were way to big on her hung like tents on her she was still screaming they were too tight, get them off me they are killing me) she screamed for 2 hours non stop in the office jumping up and down bitting and tearing at the cloths, rolling on the floor, standing on chairs screaming at the top of her lungs that they are killing her while trying to rip the cloths inhalf. That day she tested pos. for strep.. We saw an NP that day.. it took 5 adults to hold down my at the time 8 year old 30 some pound daughter and 1 to pry her mouth open to get the strep swab. I looked at the NP.. and I said.. can you please call her Pedi and tell him about this right away.. this is the stuff I was telling him about that he didn't see when I brought her in.. That night her Pedi called me and told me he had good news and bad news.. Good new he no longer thought it was a conversion disorder, Bad news he thought she had something called PANDAS.. later I found out that when the NP called the Pedi, she told him "this child doesn't need a doctor she needs an exorcist. I think back to those time with my daughter and I can see how this could be us in this same spot.. Last year my son was hit bad with PANDAS his biggest symptoms were tics and movments all bought on along with a strep infection.. and the doctors still wanted to call it conversion disorder, wouldn't treat him beyond the 10 day couse of antibiotics for the strep after those 10 days he got so much worse to where they admitted him into the Akron Childrens Hopsitals.. where I had all the doctors telling me yes they know about PANDAS.. because I kept telling them that is what this is.. I had been dealing with it for a few years with my daughter at that point(though she didn't have the tics) His ASO were elevated while at the hospital and for god sake this All started along with a strep throat.. and they still told us NO it wasn't PANDAS it was a conversion disorder, they brought psych in.. and asked me and my husband to leave the room.. then they brought us back in and told us.. that when we were there my son was worse and that we are making him worse and that this was all because we were pushing him to play football..(which by the way was never the case.. He loved football but when PANDAS hit he was deadly afraid that if he played football he would die.. only the 1st day his fears hit I didn't know we were dealing with PANDAS he just was saying I dont' want to go to practice, I cant go to practice.. and I told him to go practice... that was what they were going on for us pushing him to play) He was admitted in the hospital for a week they ran every test known to man.. and I kept putting paper after paper research after research into these doctors hands.. (they didn't like me much) and when the doctor told me it was not PANDAS it was a conversion disorder I told him he was wrong... that went over really well... but by the time we left they had upset my son telling him this was all in his head and that he had to take the Rx and "believe really believe" that he would get better and he would...

WTHeck.. magic pills.. they Rx him Risperdal that is the pill the doctor told my 12 year old he had to take and then "believe really believe it would work" At this point i knew I was getting nowhere so I took the Rx and never filled it just so they would let him go home.

I guess.. this all just is eating at me... I can not imagen how scared any child would be being taken away from there parents.. but having PANDAS children and knowing and seeing 1st hand there fears and thoughts and how extream the anxeity is.. I feel like my heart is being tore in two for this little girl.. I wish there was something I could do to help and to keep this from ever  

Facebooking my blog #5 January 2011

Happy 1 1 11
January 1 at 12:28am

Just waking up from the long but fun night.. I would say I feel old for sleeping in so late.. but seeing how me and my boys are the only ones awake at my place I'm not feeling that old.. the teenagers or stilled sound asleep as is Sweet Pea and DH.
January 1 at 10:53am

Waiting for Heather to come hang a bit.. the kids keep asking when are they coming????
January 1 at 1:15pm

Relaxing in bed watching v and playing with my nook
January 1 at 8:20pm

Home from church today :( with 3 sick kids.. DH was staying with them while Mr man and I went to church.. that was until Little Man started puking and crying his eyes out for mom.. So I turned around and now here I sit.
January 2 at 10:28am

Rhett just cam from the bathroom "mom did you know diarrhea is made out of poop?"
Hahahahahahaha... oh being a mom to a 5 year old boy is so much fun..:-)
January 2 at 2:00pm

I'm sort of finding it funny that my boys are sitting next to each other playing tag... Yes tag, like in your It.... but they are playing it on the wii...
January 2 at 8:25pm

Sleeping on the couch tonight since both my sick babies want to sleep with mom and since I don't feel like sleeping between two sick kids I made doggie beds on the livingroom floor for Sweet Pea and Little Man and ill take the couch.
January 2 at 11:28pm

I found about 10 christmas cards that I signed, addressed and stamped but never got around to mailing out... WOW I'm so on the ball.... Oh well hey if you get a Christmas card like a month late from me just know I was thinking of you before Christmas..
January 3 at 12:48pm

The plan is for all 4 kids to make it to school tomorrow.. fingers crossed there will be no more sickness tomorrow.
January 3 at 9:59pm

Alone at last... :-) DH went back to work today and all 4 kids are at school. Now to figure out where to put all the stuff they got at christmas.
January 4 at 9:00am

cooking dinner.. kids are playing wii.. later tonight OSU football.. but between 9-10pm its all about V.. with football during commercials.
January 4 at 5:41pm

this is not a good thing.. my poor tummy is killing me :( I was really hoping to avoid the bug the kids had... YUCK....
January 4 at 7:58pm

feeling better just a bit on the tired side.. Only now I have Princess home sick.. That only leaves Mr Man who hasn't had it. Then it should be out of my house... Yea!!!!
January 5 at 9:18am

Don't worry that is just me screaming nothing to worry about and don't freak out if you see my computer flying through the window. I tell ya if this thing turns off on me one more time......
January 5 at 1:00pm

Why are my children still awake and bickering in their beds?? I just found myself saying "DON'T MAKE ME COME IN THERE" LOL... That ranks right up there with the worst saying in the whole wide world "Because I said so" Look what these children make me do... :-)
January 5 at 10:35pm

Its Mr Man's turn. He is theone home from school today. my kids share really well. On a good note i didn't have to go to my dentist appt this morning since I have a sick child who I can't leave home alone. See there's an upside to everything:)
January 6 at 9:14am

thinking I should find something healthy for lunch seeing how my breakfast was a bottle of water and sno-caps :-)
January 6 at 12:18pm

Im so glad the doctor office moved my appt up an hour only 2 tell me they r running way behind
January 6 at 8:16pm

‎3 cases of strep and an ear infection... As soon as I got home from the doctors at 9:30pm with Princess, Mr Man and Little Man.. I packed up Sweet Pea and took her to my grandma to spend the next 24 hours... I tell ya when her PANDAS symptoms started to flare over the last two days I knew she had been around strep.. It just didn't hit me till this afternoon that it could have been her brothers and sister who had it..
January 6 at 10:35pm

I just tested pos 4 Strep :( now im waiting 4 my z pack 2 be ready think i should see he they will call something in 4 DH
January 7 at 2:29pm

In my pj's, on the couch layingdown with my blanket,pillowand nook. Hopefully I don't have to move tne rest of the night. Barry is in charge of dinner and child care from this point on.
January 7 at 5:59pm

Why is it the 15 yrs old(well almost) and the 5yr old fight the most?? I think it has something to do with their personality being alike but its rather funny to listen to and watch
January 8 at 10:44am

I love my nookcolor ereader. It has been extreamly useful as I lay here not feeling like moving I can read and. Check facebook without getting out of bed if one has to feel sick cool toys are the way to do it
January 8 at 1:47pm

Think I might putt the nook away, feeling a little tired of reading. Time to pull out the dvd's Twilight, New Moon, and Eclipse sounds like a good way to spend an evening in bed.
January 8 at 6:04pm

Even though I walk through the valley of the shadow of death Your perfect love is casting out fear And even when I'm caught in the middle of the storms of this life
I won't turn back I know you are near
January 8 at 10:33pm

My hubby is the best he just brought home my favorite comfort sick food. KFC mashpotato bowl
January 9 at 12:12pm

My parents just left, they stopped by and gave Princess her birthday gift 9 days early..
January 9 at 7:47pm

So am I like the only person who still has their christmas tree up
January 9 at 8:01pm

Post strep infection!!!! can't my kids just get normal things like a cold or something.. Mr man was in extream pain lastnight with his knee killing him, that and stomach pain and vomitting.. took him back to the doctors to be tolad it's like a secondary strep infection which is bringing on these symptoms.
January 10 at 12:59pm

Maybe just maybe I might finish this weeks Bible study before we meet tomorrow night.. you know the plan of one of day this week sort of got messed up when I got sick.. feeling better now and just finished one days study..:-) two more to go...
January 10 at 7:48pm

ornaments are now off the tree.. but dang it one of my favorite hallmark keepsake ornaments has gone missing.. I put it on the tree this year cuz the keepsake box is empty but it's not on the tree or under the tree.
January 11 at 12:31pm

off to the school for a meeting for Rhett.. It's snowing really good out there ..
January 11 at 2:49pm

Thought I was feeling all better till I went out to shovel the driveway so that Barry wouldn't have to do it when he got home.. My goodness did that take every bit of energy I had.. guess I'm not back to 100% yet..
January 11 at 7:41pm

Man there better be a two hour delay in the morning cuz I can't sleep even though I'm extreamly sleepy...
January 12 at 12:45am

yea baby 2 hour delay :)
January 12 at 5:36am

After getting the kids to school had to spend a good amount of time calling to change all the plans for the month.. One thing gets changed and I have to change 4 or 5 other things to work around the 1 change... Will no longer be going to Akron tomorrow won't be going till the 18th.
January 12 at 1:06pm

Thank you Lord for a wonderful neighbor who suprised me by useing his snowplow on my front sidewalk.. After doing the driveway lastnight I wasn't looking forward to having to get the sidewalk cleared today.. Think I'll leave the snow in the driveway for DH ;)
January 12 at 1:15pm

UGH!!!!!!!!!!!!!!!!! doctors.... UGH!!!!!!!!!!!!!!
January 12 at 6:54pm

my soon to be 15 year old is amazed at the fact that if she sticks a blue cup inside of a red cup that they turn purple
January 12 at 7:11pm

Looks like Sweet Pea has the next 6 days off school.. Think being around all this sickness is getting to her also, being on a daily antibiotic for the last 8 months has kept her from getting a full blown case of strep but she is sick today. No school friday and monday for the kids, and tuesday she will be at the childrens Hospital seeing the immuneologist..
January 13 at 9:19am

There you will all be happy to know the Christmas tree is now down and out of my house.. shhhhh we won't talk about the fact that all the other christmas decorations are still up around this place :P I also happy to report that the missing christmas orniment has been found.. laying deep in the branches down in the middle of the tree.
January 13 at 10:49am

Since it's now after 1am.. I think I'll head of to read and then go to sleep.. night all.
January 14 at 1:09am

Taking Princess out for any early birthday dinner with Gabby and Shayanna tonight then dropping them off at a youth group party
January 14 at 2:44pm

Been shopping with Princess for the last 4 hour she didn't think I would find a store with wifi but I did :)
January 15 at 6:50pm

today is just flying by.. church this morning, then went grocery shopping, just finished lunch.. I heard i miss a great game this morning, but didn't feel like dragging kids who are just starting to feel better out that early. Princess High School softball team beat the Elyria Sundogs 2-1. She pitched 6 innings, striking out 9 and 1 walk. Also she went 2-3 with a double
January 16 at 2:10pm

OH NO!!!!!!!!!! I'm two cups away from being out of my Tim Hortons hot chocolate... No other hot chocolate will do... UGH... There needs to be a Tim Horton around here..
January 16 at 8:43pm

housework coming along slowly.. keep getting distracted with such things as children and internet :)
January 17 at 11:45am

At this time 15 years ago, I was sitting in an exam room for my 1st weekly OB visit, He did the exam looks up at me as says "Do you know your in labour?" I was like "WHAT?!?!?!?!" I knew my back was killing me but I had shopped the whole day before and figured i just over did it.. It was only Jan 17, I wasn't due Till Feb 2nd. He said 'yea, you might want to start timeing these pain"
January 17 at 11:54am

At this point in time 15 years ago I had been in the hospital for about an hour and 15 mins.. Thinking my baby girl should be hear any soon... goodness was I wrong.. Princess loved just taking her old sweet time.
January 17 at 7:47pm

It was at this time 15 years ago I was begging for pain meds.. didn't get the epidural until 1:30am though.
January 17 at 11:12pm

‎15 yrs ago at 610 Am my little 6 pounds 2 oz 21.5 inches baby girl was born happy birthday Princess
January 18 at 6:27am

Long long day very sleepy. About to take Princess friends home and think ill crash. Spent the day with aniston at the akron childrens then came home had dinner Princess had a few people over for cake and that was my day
January 18 at 8:44pm

Why am I still awake... Must get sleep... Night
January 19 at 12:08am

Two hour delay :)
January 19 at 5:33am

No school :) :) :)
January 19 at 7:27am

My house is crazy today...no school so the kids have there friends over. Got 4 extra. T
January 19 at 1:56pm

Sweet Pea lost a filling... UGH.... another trip to the dentist is in order... Only she if driving herself crazy with the way the tooth feels without the filling... It's going to be a long night.. Praying I can get an appt tomorrow for her.. and then praying the roads are ok for me to drive from Norwalk to Medina for that appt.
January 19 at 7:30pm

Thanks to facebook my procrastination skills have reached a new high
January 19 at 8:52pm

Took Princess, Mr Man, and Little Man back for a recheck today, all seems to be going well. After I got them back at school Had lunch with my SIL Shannon and got to play with T-man and hold and feed K who is now a month old and 8 pounds.. Sweet little thing is growing like a weed.. continue in comment section....
January 20 at 2:25pm

here was the comment part of it.
Manage to get a shower in also :-) Now getting ready to pick Sweet Pea and Little Man up at 3:15 from school, Princess up at 4pm from softball lifting, Mr Man up at 4:30pm from skating, do homework, feed kids, take Sweet Pea to gymnastic at 6-7pm take Princess to volleyball at 7:30 pick her back up at 9:30.. WOW thursdays are busy... As for Sweet Pea and the dentist.. they were not in today but the call has been made so hopefully they will call me tomorrow and set something up to get that tooth fixed... Happy Thursday all.
January 20 at 2:28pm

Thought I would sleep in this saturday since I had no place to be this morning.. That did not happen, Got woke up bright and early by two boys who were freaking out with a Major emergency... The Wii wouldn't work.. no power light of any kind red or green... After messing with it for an hour I now have the power back to it and too happy boys.. ONLY I'm wide awake while my lucky girls are still sound asleep..
January 22 at 9:23am

Very long day but I have one very happy steelers fan tonight. Mr Man is over the moon. Going to bed now have to get this house in order this week got two birthday parties to get ready for one Friday one Saturday and then winter jam next sunday
January 23 at 11:05pm

Two cans of my favorite Tim Hortons Hot Chocolate was just delivered to my door. :-)
January 24 at 12:48pm

Ok did not get the workout in this morning and did not get the house work done.. Did make phone calls and talked with people at the National Institutes of Health, now we wait and see what comes of that.. and Did get my hot chocolate :-)
And in other fun news only 6 more days till Winter Jam!!!!!!
January 24 at 1:21pm

not finding it fun at all that my throat is starting to hurt really bad, Didn't I just get over strep throat, I SOOOOOOOOOOOOO don't need it again
January 24 at 11:45pm

Throat doesn't seem to be hurting today and I don't feel sick so I think we might be ok. MUST clean the house this place is so cluttered and there are toys and cloths everywhere.. Sweet Pea friend party is Friday and Then Saturday is the girls family birthday party so I not only need to get it clean I need to figure out what I'm making for dinner that night for everyone.. guess I should go get started.
January 25 at 10:06am

Sigh I was looking forward to watching V at 9 not so much to hearing the president
January 25 at 8:41pm

Guess I'll go lay in bed and read some before passing out.. Another long day ahead tomorrow.. Taking Sweet Pea to Medina for an appt, afterwards going birthday shopping with her, Then rushing it back to take Princess to the doctors. Got one room in the hosue totally clean top to bottom today. wonder if I'll get the rest clean before the parties this weekend :-) Night all
January 25 at 10:29pm

feed kids breakfast, take kids to school, go to Medina for kid dentist, feed that kid lunch, pick kids up from school, take another kid to doctors, feed kids dinner, take kid back to school for softball, pick kid back up when it's over, in there somewhere bath them and do homework with them and then go to bed... sound like a normal day for a mom.. Happy Wed all.
January 26 at 8:20am

I know they say antilock brakes is a safty feature but I am not feeling to safe everytime I try to stop at a stop sign and end up in the middle of on coming traffic because the brakes aren't stopping me..
January 26 at 8:57am

Sitting at the hospital with Princess waiting for lab work to be done... testing for mono but she really doesn't seem that sick to me when annie had mono she was really really realyy sick but doc wants to check so here we sit
January 26 at 6:30pm

Well that's it for me.. I'm going to bed.. another full and busy day ahead tomorrow.. night all.
January 26 at 11:10pm

Just spent all morning doing one of my favorite things.. Playing with the twins. Now about ready to head off with my mother in law.. Later will be pick kids up from school and Mr Man from roller skating, then gymnastics for Sweet Pea and volleyball for Princess.. and some where in there I still have 1/2 the house to clean for the parties this weekend... later all..
January 27 at 12:30pm

I am NO WHERE near ready for this weekend.. Still so so much to do.. but at 6pm tomorrow night is Sweet Pea's sleep over birthday party, 6pm Saturday is the girls birthday party here at the house(which is soooo not clean at all) and Sunday will be my day of rest except it won't be LOL softball(high school) Church, softball(travel), then Winter Jam... I"m sure it will all pull together i just don't know how LOL.
January 27 at 8:47pm

clean, decorate, party, repete... party tonight, party tomorrow, Winter Jam sunday.
January 28 at 11:11am

Some people cant sleep because they have insomnia i cant sleep because i have internet connection :)
January 29 at 12:47am

Good night only one girl still awake and that is Sweet Pea so i can just tell her 2 in 2 bed :)
January 29 at 2:56am

Today my baby girl turns 9 years old... WOW 9 years old already.... Happy Birthday Sweet Pea... I love you more then life.
January 29 at 12:35pm

All birthday parties are over for the weekend. Bring on Winter Jam. Guess I should go shower seeing how I know I'm not going to bring myself to wake up one second sooner then needed for church in the morning.. g
January 29 at 11:30pm

Winter jam was the best at Taco bell in brunswick about b head home this was the best lots of pic 2 come
January 30 at 11:08pm

Morning is going to come way to soon my eyes r burning like I need sleep but to pumped up form singing dancing and screaming at winter jam. Ugh going to be dead trying to get the kids off to school
January 31 at 1:07am

Wow not the best day first I broke a tooth that is now fixed but took up the whole afternoon now my computer has a virus and I don't know how to fix it blah
January 31 at 6:10pm

Picking Princess up from softball at the moment but im excited God is good i think i was able 2 remove the virus :)
January 31 at 10:08pm

I give up spent way to much tjme trying to figure out what is wrong with this computer I found the virus fixed it. But can't get internet explore to work since tomorrow is another day I'm going to bed
January 31 at 11:29pm

Facebooking my blog #4 Dec 2010

‎1st day of December.. and it's snowing!!!!!!!!! the kid inside of me is all excited wanting a white December to make it feel more Christmas-ie but the mother who has to drive to Akron Next week for Sweet Pea's doctors appointment doesn't really feel like driving on icey/snowey roads just yet..
December 1, 2010 at 8:02am


Must have kids feed, bath homework done.. all before Sweet Pea's gymnastics tonight.. because when i get home It's CAVS time Baby... :-)
December 2, 2010 at 11:21am

Pizza, Wings and The Game
LETS GO CAVS!!!!!!!!!!!!!!!!!!!!!!!!!!!
December 2, 2010 at 7:28pm

I never expected us to win but dang it.... It would have been nice to have someone put him on his butt hard... :(
December 2, 2010 at 11:10pm

Watching twilight next new moon then out 2 buy eclipse and watch that :)
December 3, 2010 at 6:36pm

There is snow ON THE GROUND..... I'm like a little kid Hahahah... we have had flurries but nothing on the ground.. While it's just a dusting IT IS ON THE GROUND!!!!! :-) As long as it is still good driving for my trip to Akron on Tuesday I'm happy..
December 4, 2010 at 7:57pm

Think I need to go outside and take some pictures of the lights.. but man it's cold & I know I'll just want to take more when there is alot of snow with the lights.. boy I hope there is a good amount of snow by christmas.. Maybe I should pick up inside a bit and just do the inside light pics :-)
December 5, 2010 at 6:52pm

hmmm.. so much for the snow they said was coming, all we have is a dusting which I'm sure will be gone by afternoon. Off to Akron Children's with Sweet Pea this morning. I heard there is plenty of snow there :-) 2 days till sidewalk prophets I can't wait..
December 7, 2010 at 8:04am

Long day in Akron and looks like we will be spending more long days in Akron with Immunology... tired now.. going to read and then fall asleep.. night.
December 7, 2010 at 10:49pm

spent all morning on the phone again.. Got the appt set with the immunologist for Sweet Pea So heading back to Akron Childrens next tuesday. Tomorrow Dentist for Little Man, Doc appt for Mr man, and then the concert for me. Friday Dentist appt for Princess. Mon, orthodontist appt for Princess and dentist appt for me.. then Tuesday all day in Akron.. ~sigh~ i don't like how having to run everywhere makes the time go by so fast.
December 8, 2010 at 12:02pm

Isaiah 40:31 But they that wait upon the LORD shall renew their strength; they shall mount up with wings as eagles; they shall run, and not be weary; and they shall walk, and not faint.
December 9, 2010 at 12:10am

There is a sour milk smell around my computer and I can't for the life of me figure out what or where it is... must ask the kids if they spilled something around here and then ring there neck if they did without telling me or cleaning it up..
December 9, 2010 at 12:23am

dentist for Little Man done, Doc with Mr Man done, they changed his antibiotic he goes back in two weeks hopefully this will clear it up. New a/b picked up.. Lunch in the oven now time for laundry and cleaning the house before the concert tonight.
December 9, 2010 at 12:38pm

I want to be where You are
I’m running into Your arms
And I will never look back
So Jesus, here is my heart
When did love become unmoving?
When did love become unconsuming?
...Forgetting what the world has told me
Father of love, You can have me
You can have meSee More
December 9, 2010 at 12:54pm

Leavin with Heather Traci Stephanie Sherry & Candace in about 45 mins to head to the Sidewalk prophets Concert.... Can't wait... :-)

wow took 2 1/2 hours to load a 5 min video onto facebook... but it was well worth it even if my camera work is shakey and I sometimes forgot I was recording and found myself singing along LOL.. now time to get dress take PRincess to the dentist and then go to work.
December 10, 2010 at 9:09am

can't stop singing today... lastnight was so much fun.
December 10, 2010 at 12:13pm

one would think when your kids were younger that getting a good group shot would be harder.. but no.. it seems that each year gets worse... Though I guess it was the younger one tonight who just wouldn't smile to save his life and yes his life was threatend :-) So this year christmas card photo will have Little Man not smiling just making goofy faces.
December 10, 2010 at 8:12pm

While DH was flipping though the stations tonight he came across Sidewalk Prophets singing there new christmas song.. and not just singing it.. It was taped at lastnight concert... IT was so cool to watch it again.. seeing how my memory card started flashing full when I was taping it lastnight and I spent the rest of the song deleting old stuff off the camera..
December 10, 2010 at 10:49pm

I'm thinking a new computer is on top of my christmas list :( this stupid thing was turning off every 10 mins today.. made photo editing a little rough. but the christmas card photo is now being printed so I can maybe get christmas cards out this year.. sending the kids to grandmas tonight to hopefully get a little christmas shopping in.. I have nothing pretty much at this point.
December 11, 2010 at 12:26pm

when I said a little christmas shopping I thought I would get alot more done then I did... UGH.. Couldn't find anything I needed and ran out of time.. Christmas is less then 2 weeks away.. I feel like I'll be writing out IOU's and putting them under trees... :-(
December 11, 2010 at 10:26pm · Friends Only ·LikeUnlike · Comment

UGh..I ordered the wrong christmas picture...shoot.. well it was the right shot but I did the one with the red eye and not the one I cleaned the red eye up on... OH well too late now.. people will just see my kids with red eyes this year..
LOL the twilight fan in me can't help but LOL about this..
December 12, 2010 at 2:02pm

really want a snow day tomorrow.. but snow day or no snow day I think I need to call a doctor for myself.. not that i feel sick sick.. but my throat hurts so bad, I don't remember it ever hurting this bad.. and if there is a chance at all it could be strep I need treated ASAP so it doesn't affect Sweet Pea
December 12, 2010 at 8:50pm

the christmas lights look beautiful with all the fluffy snow... but brrrrrrrrrrrrrrrrr is it cold..
December 13, 2010 at 7:01pm ·

feels like temp of -5 outside at the moment.. brrrrrrrrrrrrrrrrrrr
December 14, 2010 at 7:54am

time to pick up Sweet Pea from book club, Mr Man from skating, drop the boys off with grandpa and go shopping with grandma and Sweet Pea
December 14, 2010 at 4:05pm

got to love when you and your 3rd grader forgets the date and forgets there is a project and paper due the next day.. Sweet Pea and I are out shopping with Grandma only to remember at 8:30 something that her project and paper are due tomorrow.. We get home about 9pm we eat dinner(yes at 9pm) then works on the project until 10:30pm.
December 14, 2010 at 11:46pm
(need to add here that her project looked like it was thrown together at the last minute, or atleast I thought it did.. BUT the teacher loved it gave her an A+ and it is on display in the school Libary now How crazy is that???)

blah I have been staying up way to late the past few days.. I don't think the 3 cans of pop I just downed in the last hour is going to help me fall asleep any faster either.
December 15, 2010 at 12:05am ·

went to my moms today while the kids were at school, while driving there it hit me I haven't been to my parents house in 2 months and that was just to park and take the kids trick or treating.. Anyways while there I found some old pictures that were my grandma so I grabbed a handful to scan and put online.. working at that now.
December 16, 2010 at 10:46pm

none of my kids want to see Santa this year.. :( in the past none of them have wanted to and I just sort of forced the issue.. but I think this year i'll just let it be unless they change there minds.. maybe i can brive them with something LOL..
December 17, 2010 at 8:16am

Little Man just broke Princess's finger, I think.. at least it looks broken to me ~sigh~ DH is just going to LOVE coming home to me telling him I think we need to take Princess for X-rays... and to top it off it's her pitching hand and she has a game sunday and a softball tournament on the 28th... OH the fun...
December 17, 2010 at 4:06pm (it wasn't broken just jammed)

WOW... Christmas is really soon.. I still have cleaning and baking to do.
December 19, 2010 at 5:54pm

Took a total of 7 hours over 2 days but the wrapping is done well almost still have a few more things to buy
December 19, 2010 at 11:30pm ·

Christmas music egg nog and baking cookies with Sweet Pea
December 21, 2010 at 4:20pm

Off to Akron Children's to see the Immunologist... this should be fun...
December 22, 2010 at 10:29am

Back from Akron.. minus 30ml of blood from Sweet Pea, she was NOT a happy little girl with that.. next trip to Akron is Jan 11 and then again on the 13. Now time to make dinner.. and go to bed early.. all the driving gave me a headache and I'm tried.
December 22, 2010 at 6:04pm

Polor Express and peanut butter fudge.. Love Christmas break...
December 22, 2010 at 8:41pm

Cleaning, baking cookies, taking Aubrie back to the dentist.. those are the plans for today..well morning and afternoon anyways.
December 23, 2010 at 9:03am

while cleaning the kitchen I placed a glass of pop on the table, Mr man came in tossed something on the table and spilled my pop all over the place.. I clean it up get everything un stickey, pour another glass of pop, grab my nook turn on christmas music start cleaning again.. Only to have Little Man come in and spill my pop.. this time on my Nook.. Thankgoodness for the Nook cover.. that is all I have to say..
December 23, 2010 at 3:40pm

Please pray 4 my grandpa he is being rushed 2 the hospital 4 his heart as i type this
December 23, 2010 at 6:29pm

Don't really have any new news on my grandpa yet it was a very late night so I havnt called anyone yet but grandpa was transfered to elyria I will update once I hear more please keep him in your prayers
December 24, 2010 at 8:54am ·

eating grandmas seven layer candy cookies watching the christmas story only wish grandpa was doing well and out of the hospital to enjoy it other then that having a wonderful christmas

December 25, 2010 at 8:08pm

happy Birthday Jesus i'm So Glad Its Christmas all The Tinsel And Lights and The Presents Are Nice but The Real Gift Is You. happy Birthday Jesus i'm So Glad Its Christmas all The Carols And Bells make The Holiday Swell and it's All About You
happy Birthday Jesus Jesus I Love You!
December 25, 2010 at 11:25pm

Puppy sitting so mom and dad could go see grandpa he is cute but its like haveing an extra kid one who pees on the rug
December 26, 2010 at 1:17pm

Got to babysit the newest Chaffins girl tonight.. she is a sweetie.. Then got a call that I forgot to pack Aniston's antibiotic so the going to the movies plans was changed to a trip to New London.. Now sitting at home waiting for Aubrie to get home..
December 27, 2010 at 9:31pm

Dinner is about done.. today on the menu BBQ pulled pork, greenbeans w/bacon and corn muffins... YUM!!!!!!
December 28, 2010 at 6:14pm

Grandpa got some good news today.. which means tomorrow they will be going into his heart to see what is going on. I think they are doing the catherization around 8:30am. Thank you for all your prayers this past week and please continue to lift him up to the Lord.
December 29, 2010 at 12:32am

ya know.. I really do suck at super mario..
December 29, 2010 at 10:31am ·

I might suck at super mario but I am high scorer on Hey Ya at Just Dance 2. :-) Hahahahaha..
December 29, 2010 at 9:53pm ·

Sweet Pea just came in my bedroom asking 4 a coin I asked why its because she and Little Man can agree on what movie 2 watch next. I say its 1:30 in the morning she ask So? Lol it gets better when I do the coin flip with them and start the new movie I say but you need to go to sleep after this rhett says why this is vacation we don't have school: ) can u tell my kids take after me
December 30, 2010 at 1:35am

thinking about going back to bed.. All the kids are still asleep so why is it that I woke up before 9????? :-)
December 30, 2010 at 9:47am

Now that I can lay in bed and be on facebook(thanks to my nook) I'm staying up way to late cuz even at 2am when I get offline I just pop open a nook book and spend another hour or two reading. Love my nook but need some sleep. :)
December 30, 2010 at 11:59pm ·


babysitting the twins this afternoon, then who knows guess it will depend on what my kids end up doing.. Maybe a movie and off to see a fish fall, or just back home to watch the ball drop.. IDK... Good bye 2010..
December 31, 2010 at 11:13am

Happy New Years facebook friends... everyone have fun tonight and stay safe... see ya in the New Year..
December 31, 2010 at 6:46pm ·

Facebooking my blog #3

It's been awhile since I did one of these post.. Think the last one was in Oct so I guess I'll do this one for the month of Nov 2010


I so did not want to wake up this morning, I was sleeping so well..
November 1, 2010 at 7:59am ·

ON MY GOODNESS.. It just hit me TODAY IS NOVEMBER!!!!!!!!!!
Oh my where is the time keep going.. I have a 11 year old birthday party to get planned and like quick.. and on the topic of Birthdays... Happy Birthday to my sister today.. Happy Birthday.. :-)
November 1, 2010 at 9:09am

Taco salid for dinner tonight. Yum..
November 1, 2010 at 7:06pm

LOL my poor kids are missing out on so much in life ;-) Sweet Pea and Little Man thought it was just amazing that a big package of coolaid needed a cup of suger and a lot of water. You know instead of just the kool-aid package to go where you just dump it into a bottle of water and shake. That or just twist the top off the plastic bottle of kool-aid .... LOL LOL
November 1, 2010

Brrrrrrrrrrrr it's a tad on the cold side this morning.. I'm not ready for this.. guess I better get ready seeing how it's November already.
November 2, 2010 at 8:07am

I need to get dressed and go vote. But it's so cold outside I want to stay under my blanket and do nothing.. but I guess that wouldn't really be a good thing so I'll go vote now..
November 2, 2010 at 9:39am ·


There voting is done, Now I can chang into my baggy tshirt and jeans with the holes in them and do nothing but pick up around the house today.. I really want a do nothing day :-)
November 2, 2010 at 10:46am ·


Little Man just finished up at the dentist, thought i would give him some time for his mouth to feel right before taking him back to school..
November 3, 2010 at 10:35am ·

I just got back from dropping Little Man off at a birthday party and didn't see Sweet Pea anywhere, When I found her she was sound asleep with a cat that is not our.. But the big question is why is she sound asleep at 5 something PM?? she can't be getting sick she won't beable to be put under next week if she is..~sigh~
November 3, 2010 at 5:28pm

Nothing like your house smelling like brownies but not getting to eat any of them.. Just made "get better" browies for Justin(Princess friend) since Princess and Dustin(Princess other friend) asked nicely and said Please.. :-)
November 4, 2010 at 10:21am

Thinks it's time to break out the heating blanket.. I"m freezing.. brrrrrrrrrrrrrrrrrrrrr... So not looking forward to getting out in this cold to take the kids to school in the morning..
November 4, 2010 at 11:07pm

So sick of coughing.. it has been 3 full weeks now.. not fun.. Anyways.. no major plans for the day.. Taking Princess to the dentist this morning but that's about it.
November 5, 2010 at 8:17am

Dentist didn't go as easily as princess had hopped.. They ended up numbing both sides of her mouth and doing more work then excepted, now she is in pain and can't talk very well so she is home and not back at school. but we are getting close to getting all the stuff the braces messed up fixed.. she goes back next Friday.
November 5, 2010 at 11:51am


what was grounding your child like before you could just take away their cell phones.
November 6, 2010 at 7:10pm

Going to bed, have to leave at 6:15AM tomorrow for Princess Varsity Winter league Softball game at 8AM then Sunday school at 9:45am and then church.. after church I think I'm going to take a nap before PM Church.. I'm NOT a morning person.. 6AM is till the middle of the night in my book.. good night all.
November 6, 2010 at 10:44pm

Good morning so far.. Princess's high school softball team won there 1st winter league game agaist Medina Buckey 4-3.. She got the win coming in at the 3rd inning and pitching the rest of the game. Then it was off to church which is always good.. key thing sticking with me this morning is you Can't Trust and Worry. got the family lunch now I'm thinking it's time to lay around and watch football
November 7, 2010 at 1:02pm

It's been a good sports weekend, 1st the Cavs, then Princess's team, and then the Browns.. :-)
November 7, 2010 at 8:13pm

Spent today on the phone with Doctor, Dentist and anesthesiologist. I'm telling ya my head just is spinning from all this stuff with sweet pea.
November 8, 2010 at 7:05pm

Thanks you everyone for the wonderful Birthday wishes.. :-)
November 9, 2010 at 11:32am

:-) Thanks guys for blowing up my wall with all 100 birthday wishes.. and for the txts and Phone calls, and to those of you who sang Happy Birthday in the van on the way to the rec and for the ones who stopped by to say Happy B-day in person.. and to my hubby and kids for the cake and gifts.. Love you all.
November 9, 2010 at 11:09pm

Surgery is done she is doing well so far just not really awake yet now we r on r way home
..
November 10, 2010 at 1:53pm

Oh my goodness... I'm sitting here in shock.. after hours of crying before hand and crying for the last 4 hours after waking up, Sweet Pea is pleasent at the moment.. talking nicely to people When I said dinner was almost done she said "good I'm hungry mac and cheese please" She hasn't ate since 11:45PM lastnight I'm sure she is hungry
November 10, 2010 at 5:42pm

"mom I really don't feel well" "no fever go to school" hmmmmm Maybe I should have listen.. Seeing how I just got back from the doctors with a perscription for her because she really is sick.. Wonder if I should be listening to Little Man and Mr Man also who are complaining they aren't feeling well but like Princess hasn't ran a fever.
November 11, 2010 at 1:14pm

oh poo. I forgot I have parent teacher conferences tonight :-( I just want to stay home and do nothing.. I know that sounds lazy.. but I was gone all day yesterday and today I'm dealing with a sick teen and a 8 year old who is still in pain.. blah I'm not in the mood to dress up and go out talking to teachers.. I'm liking the blue jeans and t-shirts and hair in a pony tail look I have going on at the moment.
November 11, 2010 at 3:06pm

Sweet Pea still cant eat solid food, her whole mouth is still hurting.. but this is not keeping her from eating.. Today the girl has ate 4 cans of chicken noodle soup, and a can of spaghetti-o's The one time she tried bitting real food, she ended up crying for about an hour..
November 11, 2010 at 8:21pm


hard night for Sweet Pea . it took about 3 1/2 hours but she is now asleep and I'm going to join her.. night all.
November 11, 2010 at 11:55pm

Sweet Pea did go to school today, but still haven't tried solid food, she ate pudding for breakfast and since they only have a 1/2 day today, She will be home for lunch guess we will see how she does then.
November 12, 2010 at 8:50am

off to go see my two favorite little babies.. yea cleaning for the party or watching the twins.. guess which one I would rather do LOL later
November 12, 2010 at 9:24am


I got to hold both C and H as they fell asleep today, think that is one of my most favorite things in the world to do.. Now back to the care of my babies,everyone has been feed lunch and are now busy entertainig themself, So i guess I should get started at cleaning this mess which has become my home, having the family over Monday night for Mr Man's birthday so It really does need to get done..
November 12, 2010 at 1:28pm

just spent the last two hours browsing online for christmas gifts.. I only got online to look up one thing.. goodness spent too much time on the computer this morning.. must go clean for the birthday party..
November 13, 2010 at 10:22am

my kids are making my head pound.. Think I want a nap, but I really need to clean still 4 more rooms to go, then to keep it clean till tomorrow night.. hahahah who am I kidding, there is noway it will stay clean that long.. Maybe I shouldn't even bother with it until the kids are in school tomorrow.
November 14, 2010 at 1:05pm

Nothing like remembering 20 mins before the appt that you need to take your 5 year old to the dentist today.. blah... I still have so much work to do before Mr Man's birthday party tonight... Well off to the dentist... and Happy 11th birthday to my 1st baby boy..
November 15, 2010 at 10:04am

The party went well ryan had fun the after mess is cleaned up now im going 2 bed next party is saturday :) happy birthday Mr Man
November 15, 2010 at 11:22pm

don't worry that noise your hear is just me screaming.. trying to keep all 4 kids schedules straight when more things keep popping up is making me a little batty
November 16, 2010 at 10:54am


Take kids to school, drive Sweet Pea to Medina again for another dentist appt, pick kids up from school, take Little Man to OT, cook dinner, eat dinner, help with homework and baths, take Princess to youth group, pick up from youth group, come home put kids to bed, then climb into bed myself.. that's my day.. some fun stuff there dontchathink??
November 17, 2010 at 8:15am

I'm sleepy think I'll go to bed.. Another dentist appt in the morning for Princess.. Sweet Pea's went well today did I mention that.. Thankfully Princess is here in Town but at 9am so no staying in PJ's for me tomorrow. :-) Night all.
November 17, 2010 at 10:22pm

Where has the school day gone.. I have to leave to do pick ups soon and yet I feel like I just dropped them off.. Love my kids but an extra hour would have given me the time i needed to get the whole place clean before they got home to mess it up again. got 3 extra girls today one teenager and two 8 year olds.. Tomorrow is my house full of boy day with Mr Man's party..
November 19, 2010 at 1:59pm

my house was a crazy mad house this afternoon.. Princess had Sydney, Dustin and Josh over, Sweet Pea had Taylor and Lexie, add my boys into the mix and the place was a zoo and OH SO LOUD.. The teens left to go hang other places and bowl, Lexie went home and Annie went to Taylors.. the boys are sitting her playing wii but everything seems so quite you think I would be enjoying it but I'm missing the maddness..
November 19, 2010 at 7:29pm

My computer keeps turning off on its own this is not a good thing at all :(
November 19, 2010 at 8:29pm


Thinking maybe I should go to bed seeing how chances are good I'll be pulling an all nighter tomorrow
November 19, 2010 at 11:01pm

Ya know its never a good thing when you wake up with a headache and theres work that needs to get done before the party of like 10 to11 5th grade boys. Already popped some pills but I'm thinking a nap may be in order to make my head stop hurting.. UGH it HAS TO STOP HURTING before tonights party..
November 20, 2010 at 9:33am

one hour into the party and so far all they have done was play an hour of football in the dark :-) Pizza should be here soon and after pizza we are off to go gitter glow bowl..
November 20, 2010 at 7:25pm

football, pizza, bowling, gifts, cake Check.. all was fun I took way to many pictures.. now the boys are playing and sometime in the next hours we'll start a movie and call it lights out..
November 20, 2010 at 11:43pm

Party was a blast.. but other plans for the day R not happening. No softball, no church, no dinner at my grandparents. in the middle of the night DH had to drive to my moms and bring Little Man and Sweet Pea home.. Little Man is sick, in pain with his ear hurting him, coughing and vomitting. Sweet Pea isn't doing well and Princess woke up this morning feeling bad.. DH and Mr Man R the only 2 going to church this morning.
November 21, 2010 at 10:01am


DH is outside hanging christmas lights. while they were gone today I set the new tree up.. it's much taller then our old 1& even with bending the top my angle isn't going to fit..hmmm what to do? maybe just put a bow on top?? It was prelit so the lights r on it.. but I think it still needs more lights. So while the tree is up it's no where near done ;-)
November 21, 2010 at 3:54pm

Just back from the doctors with the kids, Poor sick Little Man, earinfections in both ears, a bad cold and a tummy bug, got and Rx for the ears and the cold. Sweet Pea today was a recheck on the PANDAS but she woke up sick this morning also.. She now has the cold and tummy bug.. Since she is already on antibiotics for the PANDAS she walked out with a new Rx for the cold. Looks like I'm home today with two sick kiddos.
November 22, 2010 at 10:49am

Sweet pea went back to school today, Little Man is still home since he threw up his breakfast this morning.. blah.. After dropping her off at school I come home read my facebook home page and see two of my friends who live around here kids have strep.. STREP is now like the worst word in the whole wide world to us.. Please dear Lord protect Sweet Pea from this.
November 23, 2010 at 8:57am

WONDERFUL night in Basketball... Way to go CAVS & Magic !!!!!!!!!!!!!!!!!! :-)
November 24, 2010 at 10:22pm ·

very very tired, but everytime i lay down I start to cough my head off.. UGH this sucks. but can't keep my eyes open any longer.. night
November 25, 2010 at 1:12am


God who loves me & sent His Son for me Jesuse who died in my place The Holy Spirit who brings me comfort & Guidan when I need it so often, & makes intercession for me when I don't have a clue what to pray. My Husband, My Children, My family, My Friends, The Doctor who found out what was wrong with my little girl, The Doctors who are working hard to treat it.
November 25, 2010 at 8:39am

FB doesn't give me enough space to count all my blessings. So On this Thanksgiving day & everyday of the year, I sum it up with. I'm Thankful for a Lord who is my Everything
November 25, 2010 at 8:39am

Less then an hour and I'm going to drag my sick self out to the store.. I hate shopping on the day after thanksgiving,but there are just a few items that I really would like to get and they were on my christmas list before I saw the add, so I'll go out with the crazy people.. ONLY I ended up Sick sick.. blah.. not feeling that well at all.. so hit the store grab the items and then climb in bed..
November 25, 2010 at 11:05pm

Got all but one item I wanted. :-) yeah me.. LOL.. Think I'll try to get the 5AM item online, I'm NEVER going into those crazy stores again for these sales.. The people there are nuts.
November 26, 2010 at 1:26am

I don't really understand it.. but sitting wrapped up in a warm blanket watching movies, eating a leftover turkey sandwich and pumkin roll makes me Happy. :-)
November 26, 2010 at 7:48pm

The plan is to clean the house, decorate for christmas, then who knows..
November 27, 2010 at 9:24am


Why am I still awake... OH YEA I REMEMBER Shayanna and Princess won't go to sleep....
November 28, 2010 at 1:11am

going to bed at 3am and waking up at 7am.. and then being gone from 7:30am till 2:30pm really makes me a bit sleepy...
November 28, 2010 at 3:24pm

Had a wonderful thanksgiving weekend.. Extreamly fun... Tomorrow back to the normal running..
November 28, 2010 at 8:44pm

spent the morning cancelling every card in my wallet since I have no clue where it is. next shower then 2 the store 2 buy what I need 2 make food 4 Princes's volleyball banquet, pick kids up from school, take Mr man 2 the doctor at 4:30 he's sick. feed kids & send them off 2 the PTO christmas thing tonight at 6(w/my mom) while I take Princess 2 the banquet(DH won't be home yet from work) toss in a few baths&homework
November 29, 2010 at 10:27am

is 9pm to early to go to bed :-) I'm exhausted after today and i didn't even get the laundry done. Dentist appt for myself tomorrow.. I don't want to go.. not a fan of the dentist.. night all.
November 29, 2010 at 8:22pm
very forgetful today.. goodness... but thankfully Nicole loves me and calls to remind me of things I had forgot, like 9:30 doc appt for Princess(which i went ahead and cancelled)and 4:20 doc appts for Sweet Pea and Little Man which they should keep seeing how they both are not 100% well yet and can't stop coughing..Thank you Nicole now to get these kids to school and then a dentist appt for me..
November 30, 2010 at 8:17am

Road Trip for me and my Bible study girls... Going to see Sidewalk Prophets next week.... I'm excited... :-)
November 30, 2010 at 9:55pm

AND Folks that all she wrote for the month of NOV 2010

Facebooking my blog part 2.

Yesterday I posted all of Sept 2010 facebook status updates.. So today I'll give ya my Oct 2010 status updates to this point.. Then everyone will be caught up on my life and hopefully.. I'll become a much better blogger again. :-)

Oct 1,2010
@9:13AM Princess woke up FEVER FREE!!!!!!!!!!!!!! 1st time since Monday... Yea!!!!!!!!
Now that she is feeling a little better(her throat is still killing her) it's time to got put her into pain.. Off to the dentist.. shudder, I can't stand going to the dentist.. my poor little baby girl...
@10:44PM DH is leaving for work at 3something AM. Princess has to be at St Paul for a 10am volleyball game by 9am, Mr Man has to be in Milan by 10am for his soccer tournament, Little Man has to be behind the middle school at 10am for his soccer game, and Sweet pea has to be there at noon for her soccer game.. There should be 4 of me..... That or DH's weekend OT needs to cool off a bit. We Can Do This.. Thanks mom & dad :-)

Oct 2,2010
@1:07PM So far 2 day Little Man team tied 6 - 6 he had 1 Sweet Pea team won 6-1 she had 3 Mr Man is still playing but tied the 1 game lost the 2

@ 2:23PM Sitting out in the cold rain waiting 2 c if Mr Man's team gets 2 advance or not

Oct 3, 2010
@8:17AM Mr Man's soccer team did advance and took 4th place in the tournament. Princess's volleyball won one and lost one yesterday. Now on our way to MI.

Oct 4, 2010
@9:15AM Ugh something is wrong with the Internet cable modem and i cant get online i need on line b 4 i meet with Annie doctor 2 get stuf

@9:17AM K the cell phone sent that 2 soon i was saying the stuff i need 4 the meeting with the doc is online in my email :(

@10:16AM Ugh they cant get the modem back online so they have 2 send someone 2 the house but wont b here till wed afternoon

@5:38PM Cable guy came :) nothing is wrong in my house :) still cant get online :( trouble is out on the line at the road :( so i wait

Oct 5,2010
@8:15AM Still not online :(

@6:57PM back online baby!!!!!!!!!!!!!!! :-)

Oct 6, 2010
@ 11:09AM very productive morning.. spent the last 3 1/2 hours dealing with PANDAS stuff for Sweet Pea, researching stuff making sure what we are doing and will be doing will help her and not hurt her.. Spent 30 minutes of that time on the phone with one of the PANDAS doctors from NJ. In the 30 minute phone call I feel I have learned more then I have in the last 6 months since we found out and started treatment. :-)

Oct 7,2010
@ 11:30AM I have spent all day Mon, Wed, and Thur dealing with doctors after doctor learning more stuff then I ever wanted to about PANDAS.. and while I feel informed I still feel confused, Please just keep praying for sweet pea this immune disorder is just crazy. In the mean time the house looks like a tornado has gone though it twice.. but I do have clean carpets(that was Tuesday) Guess Friday will be house cleaning day.

@ 11:58Pm Thank you Dustin and Luke for the pretty rock :-)
Little Man is calling it his pet rock and was holding it and hugging it alot tonight LOL He was very upset with me Tuesday when i cleaned his room, I saw a rock on his bed and I threw it away not knowing it was his old pet rock. So tonight you made a 5 year... old happy ♥

Oct 8,2010
@11:58AM today was my no doctor day so how is it It's noon and all I done today was more doctor stuff.. OK must got shower, get dress, clean up this place and get the kids from school.

@8:22PM Thought this was funny. Regarding
the mosque near ground zero, I say let them build it. But across the
street, we should put a topless bar, called "You Mecca Me Hot". Next to
that, a gay bar called "The Turban Cowboy" and next to that, a pork-rib
restaurant called "Iraq o' Ribs"? And a check cashing center called
......"Iran out of money" Lets see ...who's really tolerant! Repost if you
agree.

@11:14PM I'm sleepy... guess it's time for bed. I'm going to Princess's volleyball tourny tomorrow, DH is working, mom is taking the kids to soccer, then DH should be home to get Sweet Pea to softball and I may be back before Mr man does the putt, pass, Kick thing, but I really have no idea how long the v-ball will take.. Happy Saturday ya'll.

Oct 9,2010
@6:08PM Back from Rocky River.. Princess's v-ball team took 3rd. As for kids and soccer Sweet pea's team lost 1-4 and Little Man's team tied 3-3 he had 1 goal. Mr Man skipped soccer to go fishing on dad's boat today came home with 27 fish, now I'm off to go watch him at the football field... Later all.

@11:40PM Can't keep my eyes open any longer.... Good Night.

Oct 10,2010
@7:06PM Church, pumpkin patch, Lighthouse, Lake Side, Church, now dinner and in a bit a fire out in the yard to end the weekend.

Oct 11,2010
@11am I think I'm taking a break from loading photos for a hour or so :-) I still have the photos from the volleyball tournament, the punt,pass kick thing, and from our outing yesterday afternoon.. but I'm thinking I should go eat breakfast seeing how it's almost lunch time.

@12:28PM There has been reported a case of strep IN SWEET PEA'S CLASS ROOM.... I'm so scared for her :-( Since the child isn't in school today and it's Monday and the class has been empty all weekend, I'm not pulling her out of school at the moment, but if anyone ends up sick at all this week in her class I'll have to. Please keep her in your prayers.

Oct 12,2010
@ 8:19AM nothing like getting woke up at 1am by a crying 14 year old with a toothache. Still trying to reach the dentist with no luck, thought they opened at 8am. :-( Not only is she sitting here in Pain but she is worrying like crazy that she won't get to school in time to play in her volleyball game tonight.

@2:30PM I hate when a day doesn't go as planned.. I don't know why it bugs me seeing how most of my days Never goes as planned.. that being said.. here I sit not having gotten a thing done today, just being the Mom taxi back and forth all day long to school and doctors and dentist.. and it's about time to go get kids and head... to a volleyball game..maybe I should cook something quick so when DH gets home he can eat.

@8:26PM Freshman girls kicked butt in Shelby tonight... Way to go ladies. :-)
Tomorrow 8am speech for Little Man and then school for all 4 kids, 1pm dentist appt for Princess.(yes two days in row) So more running tomorrow but hopefully not as much as today.

Oct 13,2010
@10:48AM eating a early lunch, then off to my brothers to love on the twins, then taking Princess to the dentist.. later all

@10:09PM I'm on the ball tonight! I got DH's lunch packed 4 work. I looked at the kids lunch menu saw Sweet Pea & Little Man didn't like what they were having tomorrow. I got there lunches all packed up thinking how nice it will be not to have to worry about that in the morning.. Then it hit me.THEY WON'T be at school 4 lunch they ...will be at the dentist & I promised them McD's if they were good ~Sigh~ anyone want some PB & J's

Oct 14,2010
@11:04AM woke up with the worse back pain I have ever felt, it is so hard to move.. Icy hot, a heating pad and Alive were my best friends this morning.. OH my goodness just typing that makes me feel Old. It still hurts but I'm able to move a little. This I think came from sleeping in a bed with both Little Man & Sweet Pea.. OUCH...

@11:21AM Beside not being able to move without pain, driving to school was awful every time i had to use the break it sent sharp pain into my back. My sweet 5 year old says "I know what will help mommy" then he closes his eyes and said "Dear Jesus make mommy's back not hurt and don't let her die, Amen" :-) think he got the die part from me yelling "ouch I think I'm going to die if i have to use the break one more time" :-)

@7:57PM no school tomorrow, so all my children have left me tonight. Still don't get to sleep in though, Sweet Pea has a dentist appt in the morning for some work to be done.. OH MY.. So not looking forward to that.. Pray she is having a good day tomorrow or this could get interesting.

Oct 15,2010
@10:44AM Dentist went fine.. now she is back at her friends playing happily. Think Mr Man is having someone over tonight.. as for me not much planned just trying to get the house in order today..

@2:55PM I just don't feel like doing house work anymore today.. too bad it's not done yet guess it's going to wait because I'm done.

@3:29PM Way to much going on again tomorrow.. Princess has a volleyball tournament at the High School, Mr Man and Little Man both have soccer games at 9am, then at noon Sweet Pea has a soccer game and Little Man has a pizza party with his soccer team.. AND DH HAS TO WORK AGAIN... calling in the grandparents again. I need a few clones..

Oct 16, 2010
@4:22PM Mr. Man, Sweet Pea, and Little Man's soccer and Princess's High School volleyball is OVER!!! done for the season.. I'll have a bit of free time what will I do with myself

Oct 17,2010
Yesterday Princess hit her head while at the volleyball invite.. 8 1/2 hours later she was still dizzy, head still hurting and her vision was really blurry.. so Last night we made a trip to the ER and a cat scan was done.. mild concussion.. Yet everyone keeps LOL at her.. while she did this at the invite.. she didn't do it... it playing.. She walked into a pole. LOL.. ~sigh~ that's my girl.

AND TODAY
@9AM 2 youngest R home with me today. both with tummy issues and not feeling well.. YUCK... Guess I'll do more laundry and get some work done around here today,Since it seems I'm stuck in the house today.

@10:30AM ‎:-( Oreo our kitten was just hit and killed by a car..
Sweet Pea and Little Man are not taking this news very well at the moment.

Facebooking my blog

I never seem to find the time to keep up my blog the way I use to, and the way I want to.. and I always think I'll go back and make up for this.. but I never do..
I had this idea that I should go back a month or so and copy and paste all my facebook updates into my blog, This will do two thing..
1) let me sort of keep the memory of what was going on, here forever in time and
2) give you my loyal readers(LOL yes all 1 of you who are left) and update of what has been going on without me having to find the time to write it all out..
So here ya go.. my facebook status updates from Sept 2010

Sept 1, 2010 Thinking it's too hot to go to soccer practice today, Wonder if the kids would notices if I just don't take them

Sept 2, 2010 @ 8AM Work and Volleyball that is the plan for today.

Sept 3, 2010 @ 6pm two younger ones went to spend the night at grandmas, about to take the two older ones to the football game... Good Luck Truckers!!!!

Sept 4, 2010 @12am after working and planning and thinking about this with every free moment I have.. I can safely say that after I pick up the paper work from Sweet Pea's doctor I'm 100% ready to go into this 504 meeting. NOW IF ONLY THEY WOULD SET IT UP!!!!!!!

@ 9am woke up cold this morning... I think I like me this fall like weather. :-)

@ noon my hubby keeps spoiling me with totally unhealthy very fattening but extremely tasty food this week.. Lunch today hamburgers with cheese and bacon and loaded potato skins with Cheddar, bacon and sour cream... YUM!!!!!!!

Sept 5, 2010
@ 8:30am Church then off to NL I think is the game plan for today, Though not 100% sure if I'm heading to NL right after church, might come home 1st stop by Lennys and then head out that way.. who knows..

Sept 6, 2010
@ 12:45pm must do dishes and finish up the laundry, then pick up a van load of kids and head to New London for rides, fair food, and fireworks...

Sept 7,2010
@10pm It is so nice outside tonight I could sit out there all night long.. POO to having to go to bed and waking up early... Bring back summer..(and keep this weather lol)

Sept 8,2010
@8 AM Work, Doc appt for Sweet Pea, Then Soccer practice for Sweet pea & Mr Man, and will finish up the night picking Princess up from youth group.. and somewhere in there feeding, bathing and doing homework with the kids.

@ 4pm The hubby has been called back to work.....:-)
He has been home since June.. he goes back Monday....
I'm happy.. but oh my goodness I have been use to having him home and using him as my babysitter.. now what am I going to do LOL

Sept 9, 2010
@ 4:05PM UGH.. heading off to the doctor with Mr Man here in about 30 mins. He has been coughing and complaining about a sore throat for two days now.. No fever But with Sweet Pea and her issues I HAVE to take him in to be tested for the strep.. Praying it is NOT strep..
@ 6:35PM No strep.. :-)
Now I'm off to the meeting at Mr Man's school.. Later all.

Sept 10,2010
@ 12:06pm Trying to explain to the hubby, why we need a new couch.. Yes I agree it is extremely comfy and long enough for him to sleep on.. and I love that the two end are recliners and that there is a fold down table with cup holders in the middle.. BUT It is faded, worn and every cushion is torn and has holes in them... It's time for it to go...

Sept 11, 2010
@12:02AM Why am I still awake??? I have to have Princess at Volleyball at 8:30am have Mr Man at his soccer game at 8:30AM, Sweet Pea at her soccer game at 8:30am and Little man at his soccer game at 8:30am... Yea I haven't figured out just how we are doing all this yet.. but I do know I need to wake up early tomorrow.. So I should go to bed.. Night all.

@ 12:35 PM Mr Man's team won 7-0, Sweet Pea's team won 6-2, and Little Man's team lost 5-4 BUT Little Man scored 3 of those 4 goals. So he is very pleased :-) Princess still at Volleyball and Sweet pea has softball at 3. Busy day and I need to do laundry and clean the house.

@ 11:50PM Please put this on your status if you know someone (or are related to someone) who suffers from stupidity. Stupidity is a real condition and should be taken seriously. You could be sitting next to a sufferer right now. There is still no known cure for stupidity, but we can raise awareness.......... 93% won't copy and paste this... because............... they don't know how to copy and paste. Will you?

@ 11:58pm Mr man is sick and can't stop coughing to save his life... not only is he not going to get sleep tonight.. I don't think the rest of us are either. :-( I have given him everything I can and he still can't stop coughing.. blah..

Sept 12,2010
@ 2PM Mr man still feeling sick, no fever, but he has chills and still coughing alot. Kept him home from church this morning in hopes that whatever is going on will be gone tomorrow because DH starts back to work in the morning and I still have this week left of the sub job I'm doing So pray he is well tomorrow so he can make it to school.. and that he doesn't pass this lovely stuff around to the rest of us.

@ 10:26PM tomorrow should be interesting. DH goes back to work after 3 1/2 months off and on 1st shift don't remember the last time he worked days.. Plus not only is Mr man not feeling Well Sweet Pea is now complaining her throat hurts.. hope she is better in the morning or it's right to the doctor with her. :-( In happy news I got... to spend time with my favorite twins today :-)

Sept 13,2010
@9:07PM Back from High School Open House.. Princess seems to have alot of good teachers. In other Princess news The Freshman V-ball team lost there game this evening :( 1st lose of the season. In more exciting news Princess made homecoming court :)

@ 11:57PM blah.. I need sleep.. come morning and working with preschoolers I'm going to hate the fact that I'm still awake. but have so much running though my head.. antibiotics, probiotics, symptoms days, Doctors.. I hate that my little girl has to deal with P.A.N.D.A.S. :-(

Sept 14, 2010
@ 8AM Morning all.

@ 4:38pm I'm so tired.. I could climb in bed right now and sleep until noon tomorrow. guess that isn't going to happen.. guess I'll go cook dinner.. Princess is at v-ball, later Mr Man has soccer, and I need to help Sweet Pea study for her SS test.. and get Little Man bathed and in bed early since he has ST at the hospital at 8am before heading to school.

Sept 15, 2010
@5:30PM Hahahaha i just won a staring contest against Jensen cat Hahahaha


Sept 16,2010
@ 6:20AM Good morning, good morning!
Good morning, good morning!
Good morning, good morning!
There will be no yawning!

@ 5:15PM O man :( im at Princess game and the camera batteries just died

@ 7:31PM Time to figure out what is for dinner,cook it,eat it and get some kids ready for bed.
Princess team won 27-25 and 25-18

Sept 17,2010
11:24AM The plan clean the whole house and do laundry today. Tomorrow MrMan soccer at 9am, Little Man's at 10am Sweet Pea's at noon. Princess has a volleyball game at 4:30pm @ Edison. Sunday afternoon Princess has 2 softball games and sun night is the start of awanas.. busy weekend

Sept 18,2010
@ 1:37PM Mr Man's team won 4-1, Little Man's team won 7-3, Sweet Pea's team lost 3-0 now it's lunch and off to Princess's volleyball game. Happy Saturday.

@ 3:30PM ya know a few hours ago I sent a FB status via cell phone and it never showed up here.. HUMMMM wonder what time it will show.. in any case.. Just dropped Princess and Sydney off to get on the bus.. In a few I'll be heading to Edison for the Volleyball game...

@9:58PM very very very tired.. 3 soccer games and 3 volleyball games, well I guess 2 1/2 I left before Varsity was over. anyways..I'm tired.. and tomorrow I have to drive to Cortland for softball.. and back and then church and Awanas.. I'm going to be dead tired tomorrow night.

Sept 19,2010
@9:59 PM wonderful day. loaded the van with 6 kids drove 2 hours to Cortland, dropped the 3 who were playing ball off took the 3 who weren't to a fun playground went back to watch 2 softball games, lost one 8-2 then played the same team again and won that one 4-2(Princess pitched that game) drove back home got back just in time to... wash hands & faces headed to church, youth group and the start of awanas. I'm off to bed.

Sept 20,2010
@ 4:40PM Not been a good day for my little girl :-(

Sept 21, 2010
@4:47PM one more day of this what 4 week sub job.. and then I'll get some facebook time.. though if you saw all the games my mom have been playing on my site you would think I have done nothing but play all day anyways LOL.

@6PM Just found my Ipod at the bottom of a sink full of dirty dish water :-( don't ask.. I don't know.. not a clue who used it last or how it ended up in the sink..

Sept 22, 2010
@9:21AM not doing the sub thing today :-( I feel awful having to call off, but Mr Man is home sick with a fever and Sweet Pea was having PANDAS issues this morning again and now she is feeling sick herself. blah blah blah..

@ 6:08PM BBQ pulled pork I did in the crock pot, mashpotatos, corn, mac n cheese, and corn muffins... YUMMMMMMMMMMMMM dinner was good :-)

Sept 23,2010
@10AM All the kids are in school today, here is hoping I don't get any calls saying I need to pick one up.. After dropping them off I went and had my hair cut, it needed it bad.. now on to cleaning the house and figuring what's for dinner. Later is Princess's volleyball game..

@1:41Pm greys anatomy is on tonight.. I'm excited....

Sept 24,2010
@8:25AM drop kids off at school, do a load of laundry, then go play with the my little niece and nephew..
@11:59PM Way to busy of a day tomorrow.. night all

Sept 25,2010
@9:25AM sitting at Sweet Peas game next 2 a man who has stopped talking and all he is doing is complaining about every under the sun

@ 2:30PM Sweet Pea's team lost 3-2, Mr Man's team lost there 1st game ever today 4-3 and Little Man's team won 7-0 and Little Man made 4 of those goals. After soccer the boys went to my parents, Sweet Pea was to have softball, ONLY she isn't doing well again :-( So no softball for her.. Homecoming for Princess later this evening.. hoping to get a few good shots of that..

Sept 27,2010
@12:27AM two homecomings out of the way.. now I'm going to bed.. I'm not feeling very well blah..... so not looking forward to the alarm going off at 5am(for DH) and again at 6am(for Princess) and 7am for the rest of us... night all.

@8:06AM OK sleep seemed to have done nothing for me feeling sick. :-( Thinking my plan today is nothing.. or as little as I can get by with.. this is not a good feeling..

@5:18PM this day hasn't gone at all as planned and i still feel crappy :(

@10:40PM spent my day getting the last of the paper work ready for the 504 meeting for Sweet Pea tomorrow.. Taking Princess to the doctor with strep like symptoms and a 102 fever, and then over to the hospital for xrays on her foot, since we were at the doctors I had them look at her foot and they thought she needed the xrays.. Rap...id strep test was Neg.. and won't have the results of her foot till tomorrow..

Sept 28,2010
@ 4:47PM The 504 meeting went ok today.. Thought it went well till I opened my email a little bit ago and found an email letting me know they need more stuff from the doctor.. Thought I had enough paper work from both her doctors.. guess I'll be making another call into the doctors office to see what we can do..

Sept 29,2010
@ 7:45AM ‎4 hours of sleep is really just not enough.
@10:53PM God is Good!!!!! been in contact back and forth with the school today and I think this 504 thing is working itself out.. Just need to run a few things by Sweet Pea's doctor and I think we are all set good to go. Bad thing is there is already a known case of strep reported in the kindergarten... hummmmm... might be time take Little Man in to be checked and Princess rechecked.

Sept 30,2010
@5:15PM Today started the day at the doctors with Princess, Then came home and steam vac. the living room, took the fall softball shirts over to have numbers put on them, stopped at walmart to pick up some stuff for sick kids, then over to CVS to pick up perscribtions, came home made lunch, then went over and helped my grandma watch the twins from 2-4:30pm about ready to leave for Mr Man's 2 hour soccer pract. which starts at 5:30

@10:21PM I can't stop sneezing...

@11:22PM Night all.. tomorrow holds much of the same for me.. starting the day dropping off kids at school, then if Princess doesn't have a fever will be taking her to her dentist appt in the morning, then coming home and cleaning the carpet in the dinning room.. and who knows what more after that.. maybe go get my baby fix helping with the twins again :-) though I should start on the bedrooms but what fun would that be.


And there ya have it ya'll every single facebook status update I made in the Month of Sept 2010

Tomorrow I hope to do a weekend recap and then on Tuesday Maybe do a facebook update thing for all the stuff I posted in Oct.. and that should bring us all up today.. Then on Wed hopefully do a wordless weds of Princess homecoming pictures.

I need all your help PLEASE.

Pepsi is giving away millions to fund great ideas It's called Pepsi Refresh project.
As alot of you my 8 year old daughter Sweet Pea has just been diagnosed with PANDAS. There is a group of parents with children who have PANDAS who has created a group to win some of this money Pepsi is giving away.. but in order to get the money we need to have the most votes. the groups is called. Parents on behalf of Dr.Cunningham's P.A.N.D.A.S. research

Dr. Cunningham is a research director at the Univ. of Oklahoma. She has been tirelessly researching the autoimmune process involved in PANDAS. She is on the verge of a medical breakthrough, which will help 1000's of children suffering with tics, ocd, etc. receive the proper diagnosis and treatment.
If your wondering what exactly is PANDAS.. read below.

P.A.N.D.A.S.(Pediatric Autoimmune Neuropsychiatric Disorder Assoc. with Strep)When a child contracts strep, antibodies that are aimed to kill the strep turn on the child and begin to ATTACK THEIR BRAIN causing inflammation. This swelling causes dramatic behavior changes. A once "normal" child suddenly has OCD, tics, high anxiety, sensory issues, and more. Most doctors are not aware of the complexity of PANDAS, how it presents itself, or how to treat it. This may lead to a misdiagnosis of clinical OCD, TS, or other mental disorders. Imagine a childhood of unnecessary psychotropic meds, suffering, and unanswered questions. With CORRECT DIAGNOSIS and treatment, remission is possible!We need this grant to fund Dr. Cunningham's study because it gives hope for correct diagnosis and treatment of this alarming disorder.Please help these kids and REFRESH the RESEARCH! Vote Project P.A.N.D.A.S!

My little girl.. is suffering from this.. every time she comes in contact with strep.. she doesn't even have to get totally sick herself.. just just has to be around it pick up a little bit of it and her body starts making these antibodies that then turn on her brain and really messes her up.. PLEASE PLEASE PLEASE take the time to go and vote every day for Project P.A.N.D.A.S.. to help all the children just like my Little Sweet Pea.

To Vote Click HERE

You should see the Project P.A.N.D.A.S. link it will have a spot to vote for this idea.. click it.. when you do it will ask you to either sign into your facebook account or give and email address(just so you can't vote ten hundred times in a day) then it will take you back to the link to click on the vote for this idea button again.. click it and it will count your vote..

We need all the votes we can get..

or go to http://www.refresheverything.com/ in the search type in pandas and it will take you to the voting link for it..

Please help my Sweet Pea and all the children like her and vote.

And Please Please pass this on to everyone you know so they can vote also.. or send them over her to read about it and then vote..

I Thank you all for your help from the bottom of my heart..

Update on Sweet Pea and the PANDAS.

I'm not going to retype all of this but I'll send you over to the other blog to read this post which talks about today being her 1st visit with the counselor and what all happened there and how Mr Man did test pos. for strep throat and what that might mean to Sweet Pea and how they both need your prayer..
Here you go.. CLICK HERE... to read the post.

Sweet Pea, PANDAS, and Prayer.

I haven't blogged about this, mostly because I haven't been really blogging about anything.
But for the last 15 months there has been some sort of change in Sweet Pea.. Right around the same time she caught Mono last Jan/Feb... things have been bugging her.. Stuff like blankets touching her, socks and clothing.. she says they are too tight even when they are clearly not.. I didn't think anything of it at 1st because she was extremely sick at the onset of this.. we are talking 103.5 fever for weeks.. The fever 1st started on Jan 9, 2009 and then went away, came back on the 19th and then went away.. Came back on Jan 24, 2009 and never went away.. she was in an out of the doctors though out this time.. and on Feb 3, 2009 the mono test came back saying she had mono and she was sick for a very long time after that.. I'm talking the sickest I have ever seen any of my children.. I don't remember all the dates but around this same time she also tested positive for strep throat which in the grand scream of things seem like nothing given how sick the mono was making her.. she ended up missing over 30 days of school and sleeping all day long, even after getting back to school she would come home just totally worn down..
She still to this point has not got back to the child she was before getting sick energy wise and in other ways.. Such as she seems to be much more clingy at times and this whole cloths and stuff hurting her thing.
For a good long time I over looked it, marked it up to her not feeling well, and then I thought maybe it just became a habit for her to think they hurt her.. It got to the point where it seemed like we would have ups and downs.. sometimes she didn't complain at all and she was perfectly happy with her cloths.. then boom out of nowhere they would all be hurting her again.. she would fight and cry trying to explain to me how much it hurt her and how tight they were and I would battle back no they aren't.. your going to wear them.. she would listen but pull at them crying and crying and trying to tug at them to make them bigger.. It all just seemed crazy to me..
I tried yelling, punishing, even bribing her... nothing seemed to work..
We all sort of marked it up to something that was brought on by the Mono well the Epstein Barr virus that will forever remain part of her..
But the weird thing about this was sometimes she would be ok then out of the blue boom it would all start up again..
Sometime around November 2009 and December 2009 things started to get worse and worse and worse.. they would start to get better and then get worse again..
In March it got to the point I felt I needed to see a doctor since this wasn't going away.
So at the end of March 2010 right before Easter I took her in.. Doctor told me it has nothing to do with the Mono and that he thought she needed a Psychiatrist. They were going to get a referral going for that.. I never really bought into that... I was thinking some sort of sensory problem which was brought on by the Mono or from how sick she was the last year. The Doctor was thinking it was some sort of OCD or conversion disorder.. I never really could buy into that because she had be perfectly fine up until she got really really sick in January/February 2009.. Sure she has always been a shy child.. but she seemed to have out grown that alot to the point of being sort of out going a leader of her friends always wanting them over for sleep overs or her going to there house.. UNTIL she got sick then she went though two different times where she didn't want to leave my side.. One was shortly after she got sick and then she started staying with friends again.. until June 2009 when she went though a phase I couldn't understand.. She was totally afraid to be out after dark.. even if I was with her.. if it got dark out she wanted to be in the house sitting right next to me and we couldn't even have the windows open.. it was weird.. and while she wanted to go to her friends houses though the day.. she didn't want to spend the night.. This went on for about 3 or 4 months.. but now she is back to being perfectly happy spending the night places and seeing it dark outside.. but this clothing thing has got really really bad.

We went to TN over spring break and everything seem to be doing alot better.. no issues with cloths no melt downs or anything like that..
Then two weeks ago it all started happening again.. only worse.. so much worse.. Normally if I just let her wear what she thought fit(normally 2 to 3 sizes too big) the world was happy for her.. but with this last onset of it she couldn't even get comfy naked.. hugs hurt her, laying naked in bed hurt her the sheets hurt the pillows hurt leaning back on the couch or chair hurt..
We were up all night with her listening to her cry and cry and crying sitting up arms wrapped around her knees in the middle of the bed or floor because everything was hurting her..
The 1st night this happened I called the doctor and demanded that they get me the script to see OT at the hospital for sensory issues.. and he asked about the Psychiatrist I told him no one got back to me about it.. I told him I'm willing to take her if he is willing to let us try OT also..So he said fine.. She got placed on the waiting list at the hospital for OT.. and he got on the ball about the Psychiatrist.. turns out there is waiting list for them also.. So they want you to go though counsellors and if they think you need the Psychiatrist then they will put you in with one.. but we got the ball rolling with the Counselling people.. This was all done on April 21, 2010
During the next few days she had issues every morning and every evening.. most of the time I could get her to sleep and off to school... But on Tuesday April 27,2010 things were so bad I couldn't get her to stop crying and having a major melt down about the cloths.. that she ended up not going to school that day.. Tuesday night was awful also.. she couldn't get comfy no matter what.. she just cried and cried and cried that everything was killing her and why is this happening.. But Wednesday morning I let her put on one of the two shirts that have never hurt her when wearing and she went to school in baggie shorts and this silky tank top even though it was only in the 60's. But Wednesday night she came home with a high fever again.. Wednesday e didn't have trouble with sleeping because the fever had knocked her out.. So we all got a good night sleep..
Thursday I called up the school to tell them she wouldn't be in and they told me they have strep running though the school so I might want to get her tested so I called the doctor and got an appointment.
30 minutes before the appointment I had her get dressed which started a major episode.. she cried and bagged to take her shirt off and wear the tank but it was so dirty and the minute she took it off I placed it into cold water.. so she couldn't wear it.. and we couldn't find the other shirt like that just in a different color.. so she had to wear something different.. and it was hurting her .. she cried and cried and screamed and yelled and was pulling and tugging on the shirt.. not only at home but the whole trip to the doctors, in the office, during the visit.. everyone thought I was bring her in because she was hurt.. I had to tell both the nurse and the doctor we saw that day(her doctor wasn't in) that no.. but I am seeing her doctor for this but she is in today because of fever and sore throat.. It took 4 of us to hold her down pry open her mouth to get the strep test.. sure enough it came back positive for strep...
Sweet Pea continued to scream "It's killing me" and "I can't take this" all the while biting at tearing and ripping at her shirt.. even after the appointment was over.. while walking to the car in the middle of the parking lot she ripped her shirt off over her head.. I said to her that people were going to see her and she blurted out in a scream that didn't even sound like her "I DON"T CARE" once in the car I gave her my sweeter to cover over herself and she continued to cry on the way home and while getting her perscription for amoxicillin.
30 minutes after the A/B was in her all the crying stopped.. and she was back to a happy little girl.. she still didn't want to wear a shirt for the rest of the day just stayed hidden under a blanket.. The next morning she woke up and seemed like my little Sweet Pea again.. wore normal(well normal for her cloths) didn't complain about them hurting her or anything...
That 1st dose of antibiotics was on April 29,2010 and we haven't had any issues like that day since.. No crying at night or in the morning ..beyond the normal her thinking cloths are too tight.. but she can find something she is happy with she isn't hurting just being in her own skin anymore.
ON Friday April 30,2010 she had an allergic reaction to the amoxicillin so on Saturday May 1, 2010 they changed her to Duricef and are now saying she is allergic to penicillin.
That Friday night though when I called the after hours line to explain the rash to the doctor.. It was her Doctor(Dr. T.) who was on call... He talked with me for close to an hour on the phone.. Doctors just don't do that..
I guess after we left the office on Thursday the doctor we saw called Dr T. to explain what was going on with Sweet Pea how she was acting and everything(because I told them that I have Told Dr T about this but he has never saw it).. They also told DrT. that she has strep throat..

This got Dr T. thinking and researching and he said he thinks he knows what is going on with Sweet Pea.. It is something called PANDAS. He said "you said all of this started around the time she got the Mono, well right around that same time she also had strep throat" and then he pointed out that the times I have mentioned to him the clothing issue and the clingy-ness and fear of the dark and all... Were all right around other times she had been sick with strep and or ear infections(that could have been strep also but once they saw the ears were bad they didn't test for strep) The explained to me what PANDAS is and what it does..
~~~~~~~~~~~~~~~~~~~~~~~~~~~~
PANDAS, is an abbreviation for Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal Infections. The term is used to describe a subset of children who have Obsessive Compulsive Disorder (OCD) and/or tic disorders such as Tourette's Syndrome, and in whom symptoms worsen following strep. infections such as "Strep throat" and Scarlet Fever.

The children usually have dramatic, "overnight" onset of symptoms, including motor or vocal tics, obsessions, and/or compulsions. In addition to these symptoms, children may also become moody, irritable or show concerns about separating from parents or loved ones. This abrupt onset is generally preceeded by a Strep. throat infection.

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
We have to do a few different things for treatment for this.. one is still see the councillor because Dr T says he really does need the Psychiatrist and maybe a neurologist help with this.. and medically.. we need to keep Sweet Pea from getting anymore strep infections.. which isn't going to be easy.. But with each on set of Strep more antibodies are being made and those antibodies attack her brain and each time it gets worse.. meaning if she get sick again there is a chance her brain may not recover 100% or that she could be left permanently in that state. WE CAN NOT let that happen.. So we are doing prophylactic antibiotics with her, she will be taking the antibiotics everyday. in hopes that it will keep her from not getting sick..

this is the first step and where we are at treating this at this time... We saw Dr T and talked about all of this with him and what it all meant this past Tuesday May 4,2010

She goes to see the councillor on May 17, 2010 and we go back to see her doctor on May 24, 2010
and the OT at the hospital called yesterday and they can't see her till July 1,2010.. by then I should have a better understanding if she will even need to go that route or not..

In the mean time I'm going to be keeping a journal of how things are going to help get a better Idea of all of this..

BUT most importantly.. Sweet Pea's needs your prayers.. So please add her to your prayer list..

I will keep you all posted..