PANDAS/ PANS Awareness Day

Today is PANDAS/PANS awareness day

And over the next few post I'm going to share short versions of why this is so very important to me

October 9,2013 PANDAS/PANS Awareness Day

Today is the First Ever PANDAS/PANS Awareness Day, and even though I don't get the time I would like to keep up with my blog, I can not let this day go by with out a post. 
PANDAS is one of the reasons, my blog time is a thing of the PANDAS..  because it has steeled way a normal childhood from my children.   I don't have the time right at the moment to share our story with PANDAS.  I'm hoping to find  time later today, fingers crossed..
I do however have permission to share one mothers story with you all... and If you lucky I"ll be able to share a lot more with you as I find time though out the day..

Here is her story.
PANDAS AWARENESS DAY…..this is Gianna’s Story

I share our struggle, so that others will not have to struggle.

When Gianna was 1 yr old, Gracie had strep 4 times, Skyler 3 times and I had it 3 times that year. We never swabbed Gianna for strep because the doctor said children that age rarely have strep and she showed no classic strep symptoms. However, she chronically had a fever spike that year of 101.8F. The fever would lower to 99.8F, go away briefly and return a few days later. She almost never had a normal body temperature. At the same time, her neutrophil counts (her immature white blood cells) were at a chronic scary level…just above leukemia levels which had us seeing a hematologist/oncologist for months. We now know she has neutropenia, so when she comes in contact with an infection, her body cannot make neutrophils fast enough to replace the ones her body is using causing illnesses to linger for long periods of time. A compromised immune system was building and creating the perfect storm for PANDAS.

Just before 2 yrs old, Gianna became very sick and a few days later her personality changed far beyond the typical toddler behaviors. She was always such a sweet, loving toddler. However, she turned into a raging, frustrated animal with blank stares and an inability to learn colors, letters, or retrieve words. I remember crying as I laid in bed asking Christian, “What am I doing wrong? I am parenting her the same as Gracie and Skyler, and they were always so sweet, compliant, and likable. I dread getting up every day knowing how difficult Gianna will be. It is like she changed overnight. I guess this is what the terrible 2’s look like. I guess I was blessed to have never gone through that with Gracie and Skyler.” I was heartbroken and exhausted.

Things calmed down between 2 1/2 and 4 yrs old, and I had no answers as to what changed her personality overnight and what brought my sweet little girl back…until Monday, Dec 10, 2012. You see…PANDAS parents can often tell you the day and exact moment they lose their child to PANDAS. She woke in a pee soaked bed. I knew something was wrong because from the moment I put big girl underwear on this child, she never had the slightest accident. Within minutes, I realized she had a fever of 101.9F. She was off…almost mute, stuttering, unable to find the words in her head. Her look was blank. The color in her eyes had disappeared…all that was left were BIG BLACK PUPILS. She sat watching TV while drinking a bottle and in a panic said, “Mommy, I can’t see. I can’t see.” I went to her and placed my hand on her leg so she knew I was there. “Mommy, I can’t hear you.” Pure panic…was my daughter having a stroke? In 2 minutes, her vision and hearing returned.

Off we went to the doctors, MRIs, EEGs, blood work and lots of worry. I came home from all of this to a phone call from my sister. “Jack just tested positive for strep. I just wanted you to know for Gracie’s sake since the kids were all together Saturday.” My heart sank…another child with PANDAS. This cannot be possible. It is supposed to be rare!

The weeks that followed brought me back to the Terrible 2’s Phase. She was totally non-compliant…down right defiant, but with a totally blank stare. She could not process anything we were saying to her. She was no longer behind those big black eyes. This was NOT my Gianna. She did not speak much except to tell me not to step on cracks (OCD), she had to wash her hands because they felt germy (OCD), she could not eat that food because it felt or looked weird (sensory issues), she was scared and could not sleep (anxiety), she was not hungry (anorexia), or she peed her pants (urinary frequency). And to voice these needs was a struggle…each word was lost in her brain which was literally on fire (Learning Impairment) and she spoke like a baby (Age Regressive Behaviors).

With a 30 day course of antibiotics, Gianna slowly returned as her immune system quieted down and stop attacking her brain instead of her infection. That is what PANDAS does. The immune system confuses the basal ganglia in the brain for the same type of cells as strep bacteria; thus, the immune system launches a full blow attack on your brain cause inflammation and neuropsychiatric symptoms.

Knowing the symptoms can change the outcome! Please, share the PANDAS awareness information I have posted today. 10 friends who have 10 friends share the information means 1000’s of  friends will become aware. You will touch a child’s life who is struggling right now, and the parents are sitting crying wondering where their child has gone.




I thank this mother very much for allowing me to share this with you... there are so many children struggling and so many parents wondering what is going on, what happened to my child, who is this child standing in front of me, why is my child acting this way... 

Folks we need to bring awareness to parents, to schools, to those in the medical community.  If you know the symptoms you can change the outcome.  

You can learn more about the signs and symptoms HERE

Help us pass the word along..  There is help for these children if they get the right treatment, but most children are getting incorrect Dx, they are being labeled according to the symptoms and not the cause. 

Another Message for Boston Children's Hospital

Just got done posting this over at the Boston Children's Hospital Facebook Page.. It is so very important that they start listening and start learning how to treat children with this disorder.

This is my 13 year old son, getting the RIGHT kind of treatment for PANDAS/PANS
Last year at this time, my sons world was ripped away from him when he got a strep throat infection. My perfectly happy, healthy starting lineman for the school football team woke up one morning, deadly afraid if he played football he would die, until that morning football was his life his most favorite thing in the world. But at the mention of football, he was hiding under a blanket crying uncontrollably, along with that came other fears, and two days after that he had a blinking eye tic, the next morning after that his head was turning to the side and a should shrug tic came also. He was also running a fever so into the doctors we went and he tested Positive for strep that day... They treated the strep but it wasn't enough to stop the immune reaction he was having to the strep.
This last year has been a roller coaster ride of doctors and hospitals and improvements in his conditions only for him to be exposed again to make things worse..
Unlike with my daughter who had PANDAS for a few years now, antibiotics alone wasn't getting his life back for him.. Steroids helped a lot but it was only a short term fix. So in July 2012 he had high dose IVIG done at Children's Hospital of Michigan in Detroit.
BCH Please Please Please.. educate yourself, learn about PANDAS/PANS what it can do to a child, and what is the RIGHT kind of treatment that can help and heal a child... Do not let another child suffer from the wrong treatment.

Rally to Support Family who lost Parenta Rights over Sick Child to Boston Children's Hospital.

Thanks to Athanasius Kircher  who read one of my earlier post about Elizabeth Wray..  I just received this Media Advisory.  I knew about the Rally and was planning on going until there was a death in the family and my plans changed.. but I had never seen the Media Advisory..  This is Excellent.   Thank you Lynn Johnson..  you are an amazing PANDAS/PANS warrior mom.



October 11, 2012 CONTACT: Lynn Johnson
PANDAS Resource Network
757.642.8700


** MEDIA ADVISORY **

Rally to Support Family who lost Parental Rights over
Sick Child to Boston Children’s Hospital

Oct. 11 – 13, Blackfan Circle and Longwood Ave. Boston
Supporters working to return Elizabeth Wray to the care of her parents are holding a 3 day demonstration at Boston Children's Hospital to protest a lack of proper treatment for Wray's autoimmune disease Pediatric Autoimmune Neuropsychiatric Disorders (PANS). Boston Children's Hospital blocked Elizabeth's parents from seeking treatment at a different facility by having their custody taken away and placed with the Commonwealth of Massachusetts. They and their lawyer are currently under a gag order at BCH's request.
What: A rally to return Elizabeth Wray to her parents for proper care and ask that Boston Children's Hospital recognize PANS for the legitimate medical condition that it is, and stop treating it is a psychiatric disorder.

When: Oct. 11, 12, 13 2012, 8am-3pm

Where: Blackfan Circle and Longwood Avenue across from Boston Children's Hospital


Elizabeth Wray Story: http://www.fightingpandas1.blogspot.com/

The PANDAS Resource Network represents 4,000 families affected by this little known disorder.

Lynn M. Johnson
Executive Director
PANDAS Resource Network
www.PandasResourceNetwork.org
757.642.8700
lynnj0750@msn.com

Still trying to get BCH to see the light.

Still trying to get BCH to see the light about PANDAS/PANS after sending links to every website I could think of I decided to start putting faces to the disorder..  Posted this today on their facebook Page..  You all would know this girl as my younger daughter Sweet Pea(the pic was taken last Thursday Oct 4, 2012)

 

This is my Daughter.. In January 2013 she will be 11 years old. When she was 7 years old PANDAS changed her life.. If I would have taken her to BCH I fear They would have placed her in a locked  psych ward and would have drugged her up on Psych drugs that would have done my daughter more harm then already was done. They would have let her symptoms get worse by not treating the problem, she never would have healed. She would have had to live her life every day with OCD, fears, high anxiety, sensory issues and an eating disorder... all because they want to close their eyes to the fact that PANDAS is real and it is caused by infections that can be treated with antibiotics. With antibiotic treatment my little girl is able to live her life... Unlike the children who go to this hospital for help and end up being ripped from their families and kept away from the treatment they so desperately need.
BCH Please PLEASE please.. educate yourself on PANDAS and the real treatment that has helped so many children with this disorder.. Don't let anymore children suffer at your hand with the wrong treatment.. Please stand by your statement "Till Every Child is Well" Learn and offer the correct treatment for PANDAS/PANS

This is just so wrong

This is just so wrong and makes me sick to think about. :(   Here is more news on the story I posted yesterday about the girl with PANDAS taken fro her parents,  if you didn't get to read it you can do so HERE ...  this is an email I got from on of the PANDAS support groups I'm part of.  Beth Maloney is Lawyer for the family, also a PANDAS mother and author of the book Saving Sammy
Here is the email.

For those of you who don't get Beth Maloney's emails, but want to know what you can do to help in the Boston case, this is from Beth. I think these people need national media exposure - NOW. I just cannot fathom that they have to wait 3 weeks for another hearing.

Things are not good with Elizabeth. She remains at Boston Children's Hospital. BCH still refuses to recognize that its "treatment" is a complete failure. She continues to decline. She can no longer walk. She barely speaks. Earlier this evening, I listened to her screaming and wailing in the background from her bed as her brokenhearted father tried to bring me up to date.

There will be a piece in the Boston Globe Magazine about PANDAS within the next three weeks. They contacted me directly as a result of your efforts...someone posted or blogged regarding my earlier emails and that is how the Globe found the story and me. Based on my interview today, which lasted for over an hour, I expect this situation will receive a great deal of attention. Keep posting. Keep blogging. It makes a difference.

I want to be 100% clear that these parents did NOTHING wrong. They took the exact same steps that you or I would have taken to help our children. This could have happened to any one of us. They are living every parent's nightmare...losing custody of their child for trying to do the right thing. And these parents need your help.

The Wrays have given me written permission to share the following information with all of you and the media.

Briefly, Elizabeth was diagnosed with PANDAS by two doctors in NY February 2012. It first showed up as trouble eating. Blood work showed mycoplasma and Lyme. With antibiotic treatment she improved and did well over the summer. But she took a dive in early September. Her parents took her to a hospital near them, but the hospital felt she needed more than it could offer. There were two possibilities suggested: Rochester and Boston Children's. The parents wanted her to go to the first place that had a bed; that was at Boston Children's so she went there. BCH immediately decided that Elizabeth's issues were all psychiatric and not medical, not PANDAS. They have refused to introduce antibiotics. And although she was on a gluten & dairy free diet, BCH immediately introduced both. She has had a spinal tap, EKG, EEG, MRI and many, many other tests. The parents were never given any test results. They were told there were "irregularities" in some tests, but they have not been informed what those irregularities are so they still have no idea. Last Thursday and Friday, the hospital told Jay that Elizabeth was cleared to transfer. He was actively working with Dr. Geller, Dr. Jenike, the OCD Foundation and Rogers Hospital to figure out where would be best for Elizabeth to go. As far as Jay knew, BCH was on board and helping him figure this out. Then on Monday evening at about 5:30 pm he was told to be at Court the next morning when the State would attempt to take custody based on allegations made by BCH. We were in Court Tuesday morning.

The State has been placed in charge of Elizabeth’s care (because it has custody), but the Judge specifically instructed that she may not be moved to the hospital's locked psych unit. I do not fault the Judge for his decision on temporary custody. It's hard to explain in a few sentences... but when a Judge is confronted with the kind of accusations that were leveled against the Wrays, it would have been very difficult for him to simply dismiss the petition (although I tried to get him to do that). He heard me though, and he protected her as much as he felt that he could - given the circumstances - by specifying that she should not be moved pending his final decision. We are scheduled to go back to court on October 23rd. Her parents are in agony knowing that she may suffer for another three weeks at BCH.

Below is the list of the names I was given by the State of those at BCH who spoke with Child Protective Services about having the State of Massachusetts take custody of Elizabeth away from her parents. I have provided as much contact information as possible. Call them. Email them. Make them understand that there are thousands of parents standing behind the Wrays. You may want to begin by sending to this email which is a general for the hospital but I want you to do more http://childrenshospital.org/email.cfm?s=1394&c=7&u=webteam

I want you to call the hospital and ask for these people. I want you to leave voicemails if you don't reach them. They need to know that this movement is only going to grow. Will you do that for us? The general number at the hospital is 617-355-6000. I want the switchboard jammed. Begin every call with “I’m calling about Elizabeth Wray. Please connect me to ...” I want your voices to be so strong and so many that - maybe - then they’ll begin to get it. I want them to know that parents are not longer going to bring their children to BCH. And I want them to know that they cannot hide behind the cloak of the State.

As far as emails, from the few that I know it appears that the pattern is first.last@childrens.harvard.edu

Here are the specific people I was told that the State spoke with:

Dr. Othman Mohammad

Dr. Simona Bigourno

Dr. Gary Gosselin gary.gosselin@childrens.harvard.edu fax 617-730-0917

Dr. Lydia Shrier 617-355-7181

Elizabeth Holleran, child abuse social worker

Deb Sorentino, child protection team

Ellen Rothstein, Esq. Associate General Counsel Ellen.Rothstein@childrens.harvard.edu

Others to contact would be:

James Mandell, Chief Executive Officer

Sandra Fenwick, President & Chief Operating Officer

Stuart Novick, General Counsel 617-355-4937 Stuart.Novick@childrens.harvard.edu

This is a link to the entire leadership team http://www.childrenshospital.org/about/Site1394/mainpageS1394P4.html

Many of you have asked if you can help with a donation. Jay wants to be clear that he is, "not the type to ask for money," but if you want to help he will gratefully accept. He is the family breadwinner and is presently on medical leave from his job where he has worked for the same employer in customer service for fifteen years. His family home is more than five hours from Boston. His family has living expenses in Boston, a huge liability for all the "co-pays" that will be charged for hospital stay, legal fees, expenses at home to manage, and no end in sight. He asks that checks be made to “Beth Maloney Esq. Trust Account” and indicate "for Elizabeth Wray" on the check. The mailing address is Beth Maloney, Esq., P.O. Box 468, Kennebunkport, ME 04046

I wish I could write more. I am so exhausted that can only imagine how the family feels. I keep picturing Sammy in that hospital bed, unable to walk, screaming as they try to force food down his throat.

Be our voice.

Beth

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Child with PANDAS Taken from Parents via Boston Children’s Hospital

In my last blog post I mentioned I was in a ticked off mood.. This is why..  I know since Sweet Pea came down with PANDAS I haven't been keeping up with my blog so it will take sometime to get you all caught up but I don't have that time and I think that is why I have stayed away from my blog, I just don't know where to start.. So if your lost I'm sorry..  but I now have two children Dx with PANDAS both Sweet Pea and Mr Man.. and we are 99.9% sure Little Man has it also.  but that is neither here nor there at this time...  

This story about this little girl has been all over the facebook and PANDAS world today and it is breaking my heart. 
Here is a blog that can tell the story.. read it 1st. 

 I am so sick over this.. I have been going from wanting to jump on a plane and punch some...

one in the face, to crying and fighting back tears... This NEVER should have happened and in a Childrens hospital none the less.. where doctors should be up to date on childhood stuff like PANDAS... UGH UGH UGH... I have two children Dx with PANDAS and at my daughters onset and worst of it all.. she refused to eat, she couldnt' wear cloths due to sesnory issues from PANDAS along with the extream spereation anxeity.. when I sought help from the Pedi he Dx her with OCD, high anxeity and a conversion disorder(his reason for the sensory stuff) a few weeks after that all heck broke loose... she stopped eating altogher, stopped sleeping, did nothing but scream and cry while she sat naked in the middle of my bed rocking back and forth she couldn't lean back on the couch or chair cuz she said it felt like people were stabbing her with a knife(though at the time she wasn't telling me this stuff just screaming her head off in pain) she couldn't sleep because laying down on the bed sheets put her in pain also.. she sat with her arms around her knees rocking back and forth just crying till she would get so tired she would passout and fall over, only it would only be for a bit because falling over waking up and feeling the stuff touching her had her screaming and rocking again... My husband wanted to rush her to the ER. he was worried she was going to dehydrate.. I fought with him, because I already had one doctor her Pedi trying to get her in with a psychiatrist, I just had this sick gut feeling if I took her in to the hospital in this state they would think she was crazy and want to admit her into the psych ward and I didn't want that for her.. so I fought with my husband... I was worried if they did that they would make me leave her and she was already having complete melt downs if I took two steps away from her, I couldn't do that to her.. Only after 3 days of this I was getting worried also and was trying everything to get something into her.. on day 3 of this.. she fell asleep.. it was only for 30 mins but it was sleep after 3 days of none(for both of us) when she woke up she was running a fever.. So I did get her into the pedi's office.. which was no easy task for a child who wouldn't put cloths on and I had to force cloths on her(even through they were way to big on her hung like tents on her she was still screaming they were too tight, get them off me they are killing me) she screamed for 2 hours non stop in the office jumping up and down bitting and tearing at the cloths, rolling on the floor, standing on chairs screaming at the top of her lungs that they are killing her while trying to rip the cloths inhalf. That day she tested pos. for strep.. We saw an NP that day.. it took 5 adults to hold down my at the time 8 year old 30 some pound daughter and 1 to pry her mouth open to get the strep swab. I looked at the NP.. and I said.. can you please call her Pedi and tell him about this right away.. this is the stuff I was telling him about that he didn't see when I brought her in.. That night her Pedi called me and told me he had good news and bad news.. Good new he no longer thought it was a conversion disorder, Bad news he thought she had something called PANDAS.. later I found out that when the NP called the Pedi, she told him "this child doesn't need a doctor she needs an exorcist. I think back to those time with my daughter and I can see how this could be us in this same spot.. Last year my son was hit bad with PANDAS his biggest symptoms were tics and movments all bought on along with a strep infection.. and the doctors still wanted to call it conversion disorder, wouldn't treat him beyond the 10 day couse of antibiotics for the strep after those 10 days he got so much worse to where they admitted him into the Akron Childrens Hopsitals.. where I had all the doctors telling me yes they know about PANDAS.. because I kept telling them that is what this is.. I had been dealing with it for a few years with my daughter at that point(though she didn't have the tics) His ASO were elevated while at the hospital and for god sake this All started along with a strep throat.. and they still told us NO it wasn't PANDAS it was a conversion disorder, they brought psych in.. and asked me and my husband to leave the room.. then they brought us back in and told us.. that when we were there my son was worse and that we are making him worse and that this was all because we were pushing him to play football..(which by the way was never the case.. He loved football but when PANDAS hit he was deadly afraid that if he played football he would die.. only the 1st day his fears hit I didn't know we were dealing with PANDAS he just was saying I dont' want to go to practice, I cant go to practice.. and I told him to go practice... that was what they were going on for us pushing him to play) He was admitted in the hospital for a week they ran every test known to man.. and I kept putting paper after paper research after research into these doctors hands.. (they didn't like me much) and when the doctor told me it was not PANDAS it was a conversion disorder I told him he was wrong... that went over really well... but by the time we left they had upset my son telling him this was all in his head and that he had to take the Rx and "believe really believe" that he would get better and he would...

WTHeck.. magic pills.. they Rx him Risperdal that is the pill the doctor told my 12 year old he had to take and then "believe really believe it would work" At this point i knew I was getting nowhere so I took the Rx and never filled it just so they would let him go home.

I guess.. this all just is eating at me... I can not imagen how scared any child would be being taken away from there parents.. but having PANDAS children and knowing and seeing 1st hand there fears and thoughts and how extream the anxeity is.. I feel like my heart is being tore in two for this little girl.. I wish there was something I could do to help and to keep this from ever  

Facebooking my blog #3

It's been awhile since I did one of these post.. Think the last one was in Oct so I guess I'll do this one for the month of Nov 2010


I so did not want to wake up this morning, I was sleeping so well..
November 1, 2010 at 7:59am ·

ON MY GOODNESS.. It just hit me TODAY IS NOVEMBER!!!!!!!!!!
Oh my where is the time keep going.. I have a 11 year old birthday party to get planned and like quick.. and on the topic of Birthdays... Happy Birthday to my sister today.. Happy Birthday.. :-)
November 1, 2010 at 9:09am

Taco salid for dinner tonight. Yum..
November 1, 2010 at 7:06pm

LOL my poor kids are missing out on so much in life ;-) Sweet Pea and Little Man thought it was just amazing that a big package of coolaid needed a cup of suger and a lot of water. You know instead of just the kool-aid package to go where you just dump it into a bottle of water and shake. That or just twist the top off the plastic bottle of kool-aid .... LOL LOL
November 1, 2010

Brrrrrrrrrrrr it's a tad on the cold side this morning.. I'm not ready for this.. guess I better get ready seeing how it's November already.
November 2, 2010 at 8:07am

I need to get dressed and go vote. But it's so cold outside I want to stay under my blanket and do nothing.. but I guess that wouldn't really be a good thing so I'll go vote now..
November 2, 2010 at 9:39am ·


There voting is done, Now I can chang into my baggy tshirt and jeans with the holes in them and do nothing but pick up around the house today.. I really want a do nothing day :-)
November 2, 2010 at 10:46am ·


Little Man just finished up at the dentist, thought i would give him some time for his mouth to feel right before taking him back to school..
November 3, 2010 at 10:35am ·

I just got back from dropping Little Man off at a birthday party and didn't see Sweet Pea anywhere, When I found her she was sound asleep with a cat that is not our.. But the big question is why is she sound asleep at 5 something PM?? she can't be getting sick she won't beable to be put under next week if she is..~sigh~
November 3, 2010 at 5:28pm

Nothing like your house smelling like brownies but not getting to eat any of them.. Just made "get better" browies for Justin(Princess friend) since Princess and Dustin(Princess other friend) asked nicely and said Please.. :-)
November 4, 2010 at 10:21am

Thinks it's time to break out the heating blanket.. I"m freezing.. brrrrrrrrrrrrrrrrrrrrr... So not looking forward to getting out in this cold to take the kids to school in the morning..
November 4, 2010 at 11:07pm

So sick of coughing.. it has been 3 full weeks now.. not fun.. Anyways.. no major plans for the day.. Taking Princess to the dentist this morning but that's about it.
November 5, 2010 at 8:17am

Dentist didn't go as easily as princess had hopped.. They ended up numbing both sides of her mouth and doing more work then excepted, now she is in pain and can't talk very well so she is home and not back at school. but we are getting close to getting all the stuff the braces messed up fixed.. she goes back next Friday.
November 5, 2010 at 11:51am


what was grounding your child like before you could just take away their cell phones.
November 6, 2010 at 7:10pm

Going to bed, have to leave at 6:15AM tomorrow for Princess Varsity Winter league Softball game at 8AM then Sunday school at 9:45am and then church.. after church I think I'm going to take a nap before PM Church.. I'm NOT a morning person.. 6AM is till the middle of the night in my book.. good night all.
November 6, 2010 at 10:44pm

Good morning so far.. Princess's high school softball team won there 1st winter league game agaist Medina Buckey 4-3.. She got the win coming in at the 3rd inning and pitching the rest of the game. Then it was off to church which is always good.. key thing sticking with me this morning is you Can't Trust and Worry. got the family lunch now I'm thinking it's time to lay around and watch football
November 7, 2010 at 1:02pm

It's been a good sports weekend, 1st the Cavs, then Princess's team, and then the Browns.. :-)
November 7, 2010 at 8:13pm

Spent today on the phone with Doctor, Dentist and anesthesiologist. I'm telling ya my head just is spinning from all this stuff with sweet pea.
November 8, 2010 at 7:05pm

Thanks you everyone for the wonderful Birthday wishes.. :-)
November 9, 2010 at 11:32am

:-) Thanks guys for blowing up my wall with all 100 birthday wishes.. and for the txts and Phone calls, and to those of you who sang Happy Birthday in the van on the way to the rec and for the ones who stopped by to say Happy B-day in person.. and to my hubby and kids for the cake and gifts.. Love you all.
November 9, 2010 at 11:09pm

Surgery is done she is doing well so far just not really awake yet now we r on r way home
..
November 10, 2010 at 1:53pm

Oh my goodness... I'm sitting here in shock.. after hours of crying before hand and crying for the last 4 hours after waking up, Sweet Pea is pleasent at the moment.. talking nicely to people When I said dinner was almost done she said "good I'm hungry mac and cheese please" She hasn't ate since 11:45PM lastnight I'm sure she is hungry
November 10, 2010 at 5:42pm

"mom I really don't feel well" "no fever go to school" hmmmmm Maybe I should have listen.. Seeing how I just got back from the doctors with a perscription for her because she really is sick.. Wonder if I should be listening to Little Man and Mr Man also who are complaining they aren't feeling well but like Princess hasn't ran a fever.
November 11, 2010 at 1:14pm

oh poo. I forgot I have parent teacher conferences tonight :-( I just want to stay home and do nothing.. I know that sounds lazy.. but I was gone all day yesterday and today I'm dealing with a sick teen and a 8 year old who is still in pain.. blah I'm not in the mood to dress up and go out talking to teachers.. I'm liking the blue jeans and t-shirts and hair in a pony tail look I have going on at the moment.
November 11, 2010 at 3:06pm

Sweet Pea still cant eat solid food, her whole mouth is still hurting.. but this is not keeping her from eating.. Today the girl has ate 4 cans of chicken noodle soup, and a can of spaghetti-o's The one time she tried bitting real food, she ended up crying for about an hour..
November 11, 2010 at 8:21pm


hard night for Sweet Pea . it took about 3 1/2 hours but she is now asleep and I'm going to join her.. night all.
November 11, 2010 at 11:55pm

Sweet Pea did go to school today, but still haven't tried solid food, she ate pudding for breakfast and since they only have a 1/2 day today, She will be home for lunch guess we will see how she does then.
November 12, 2010 at 8:50am

off to go see my two favorite little babies.. yea cleaning for the party or watching the twins.. guess which one I would rather do LOL later
November 12, 2010 at 9:24am


I got to hold both C and H as they fell asleep today, think that is one of my most favorite things in the world to do.. Now back to the care of my babies,everyone has been feed lunch and are now busy entertainig themself, So i guess I should get started at cleaning this mess which has become my home, having the family over Monday night for Mr Man's birthday so It really does need to get done..
November 12, 2010 at 1:28pm

just spent the last two hours browsing online for christmas gifts.. I only got online to look up one thing.. goodness spent too much time on the computer this morning.. must go clean for the birthday party..
November 13, 2010 at 10:22am

my kids are making my head pound.. Think I want a nap, but I really need to clean still 4 more rooms to go, then to keep it clean till tomorrow night.. hahahah who am I kidding, there is noway it will stay clean that long.. Maybe I shouldn't even bother with it until the kids are in school tomorrow.
November 14, 2010 at 1:05pm

Nothing like remembering 20 mins before the appt that you need to take your 5 year old to the dentist today.. blah... I still have so much work to do before Mr Man's birthday party tonight... Well off to the dentist... and Happy 11th birthday to my 1st baby boy..
November 15, 2010 at 10:04am

The party went well ryan had fun the after mess is cleaned up now im going 2 bed next party is saturday :) happy birthday Mr Man
November 15, 2010 at 11:22pm

don't worry that noise your hear is just me screaming.. trying to keep all 4 kids schedules straight when more things keep popping up is making me a little batty
November 16, 2010 at 10:54am


Take kids to school, drive Sweet Pea to Medina again for another dentist appt, pick kids up from school, take Little Man to OT, cook dinner, eat dinner, help with homework and baths, take Princess to youth group, pick up from youth group, come home put kids to bed, then climb into bed myself.. that's my day.. some fun stuff there dontchathink??
November 17, 2010 at 8:15am

I'm sleepy think I'll go to bed.. Another dentist appt in the morning for Princess.. Sweet Pea's went well today did I mention that.. Thankfully Princess is here in Town but at 9am so no staying in PJ's for me tomorrow. :-) Night all.
November 17, 2010 at 10:22pm

Where has the school day gone.. I have to leave to do pick ups soon and yet I feel like I just dropped them off.. Love my kids but an extra hour would have given me the time i needed to get the whole place clean before they got home to mess it up again. got 3 extra girls today one teenager and two 8 year olds.. Tomorrow is my house full of boy day with Mr Man's party..
November 19, 2010 at 1:59pm

my house was a crazy mad house this afternoon.. Princess had Sydney, Dustin and Josh over, Sweet Pea had Taylor and Lexie, add my boys into the mix and the place was a zoo and OH SO LOUD.. The teens left to go hang other places and bowl, Lexie went home and Annie went to Taylors.. the boys are sitting her playing wii but everything seems so quite you think I would be enjoying it but I'm missing the maddness..
November 19, 2010 at 7:29pm

My computer keeps turning off on its own this is not a good thing at all :(
November 19, 2010 at 8:29pm


Thinking maybe I should go to bed seeing how chances are good I'll be pulling an all nighter tomorrow
November 19, 2010 at 11:01pm

Ya know its never a good thing when you wake up with a headache and theres work that needs to get done before the party of like 10 to11 5th grade boys. Already popped some pills but I'm thinking a nap may be in order to make my head stop hurting.. UGH it HAS TO STOP HURTING before tonights party..
November 20, 2010 at 9:33am

one hour into the party and so far all they have done was play an hour of football in the dark :-) Pizza should be here soon and after pizza we are off to go gitter glow bowl..
November 20, 2010 at 7:25pm

football, pizza, bowling, gifts, cake Check.. all was fun I took way to many pictures.. now the boys are playing and sometime in the next hours we'll start a movie and call it lights out..
November 20, 2010 at 11:43pm

Party was a blast.. but other plans for the day R not happening. No softball, no church, no dinner at my grandparents. in the middle of the night DH had to drive to my moms and bring Little Man and Sweet Pea home.. Little Man is sick, in pain with his ear hurting him, coughing and vomitting. Sweet Pea isn't doing well and Princess woke up this morning feeling bad.. DH and Mr Man R the only 2 going to church this morning.
November 21, 2010 at 10:01am


DH is outside hanging christmas lights. while they were gone today I set the new tree up.. it's much taller then our old 1& even with bending the top my angle isn't going to fit..hmmm what to do? maybe just put a bow on top?? It was prelit so the lights r on it.. but I think it still needs more lights. So while the tree is up it's no where near done ;-)
November 21, 2010 at 3:54pm

Just back from the doctors with the kids, Poor sick Little Man, earinfections in both ears, a bad cold and a tummy bug, got and Rx for the ears and the cold. Sweet Pea today was a recheck on the PANDAS but she woke up sick this morning also.. She now has the cold and tummy bug.. Since she is already on antibiotics for the PANDAS she walked out with a new Rx for the cold. Looks like I'm home today with two sick kiddos.
November 22, 2010 at 10:49am

Sweet pea went back to school today, Little Man is still home since he threw up his breakfast this morning.. blah.. After dropping her off at school I come home read my facebook home page and see two of my friends who live around here kids have strep.. STREP is now like the worst word in the whole wide world to us.. Please dear Lord protect Sweet Pea from this.
November 23, 2010 at 8:57am

WONDERFUL night in Basketball... Way to go CAVS & Magic !!!!!!!!!!!!!!!!!! :-)
November 24, 2010 at 10:22pm ·

very very tired, but everytime i lay down I start to cough my head off.. UGH this sucks. but can't keep my eyes open any longer.. night
November 25, 2010 at 1:12am


God who loves me & sent His Son for me Jesuse who died in my place The Holy Spirit who brings me comfort & Guidan when I need it so often, & makes intercession for me when I don't have a clue what to pray. My Husband, My Children, My family, My Friends, The Doctor who found out what was wrong with my little girl, The Doctors who are working hard to treat it.
November 25, 2010 at 8:39am

FB doesn't give me enough space to count all my blessings. So On this Thanksgiving day & everyday of the year, I sum it up with. I'm Thankful for a Lord who is my Everything
November 25, 2010 at 8:39am

Less then an hour and I'm going to drag my sick self out to the store.. I hate shopping on the day after thanksgiving,but there are just a few items that I really would like to get and they were on my christmas list before I saw the add, so I'll go out with the crazy people.. ONLY I ended up Sick sick.. blah.. not feeling that well at all.. so hit the store grab the items and then climb in bed..
November 25, 2010 at 11:05pm

Got all but one item I wanted. :-) yeah me.. LOL.. Think I'll try to get the 5AM item online, I'm NEVER going into those crazy stores again for these sales.. The people there are nuts.
November 26, 2010 at 1:26am

I don't really understand it.. but sitting wrapped up in a warm blanket watching movies, eating a leftover turkey sandwich and pumkin roll makes me Happy. :-)
November 26, 2010 at 7:48pm

The plan is to clean the house, decorate for christmas, then who knows..
November 27, 2010 at 9:24am


Why am I still awake... OH YEA I REMEMBER Shayanna and Princess won't go to sleep....
November 28, 2010 at 1:11am

going to bed at 3am and waking up at 7am.. and then being gone from 7:30am till 2:30pm really makes me a bit sleepy...
November 28, 2010 at 3:24pm

Had a wonderful thanksgiving weekend.. Extreamly fun... Tomorrow back to the normal running..
November 28, 2010 at 8:44pm

spent the morning cancelling every card in my wallet since I have no clue where it is. next shower then 2 the store 2 buy what I need 2 make food 4 Princes's volleyball banquet, pick kids up from school, take Mr man 2 the doctor at 4:30 he's sick. feed kids & send them off 2 the PTO christmas thing tonight at 6(w/my mom) while I take Princess 2 the banquet(DH won't be home yet from work) toss in a few baths&homework
November 29, 2010 at 10:27am

is 9pm to early to go to bed :-) I'm exhausted after today and i didn't even get the laundry done. Dentist appt for myself tomorrow.. I don't want to go.. not a fan of the dentist.. night all.
November 29, 2010 at 8:22pm
very forgetful today.. goodness... but thankfully Nicole loves me and calls to remind me of things I had forgot, like 9:30 doc appt for Princess(which i went ahead and cancelled)and 4:20 doc appts for Sweet Pea and Little Man which they should keep seeing how they both are not 100% well yet and can't stop coughing..Thank you Nicole now to get these kids to school and then a dentist appt for me..
November 30, 2010 at 8:17am

Road Trip for me and my Bible study girls... Going to see Sidewalk Prophets next week.... I'm excited... :-)
November 30, 2010 at 9:55pm

AND Folks that all she wrote for the month of NOV 2010

Facebooking my blog part 2.

Yesterday I posted all of Sept 2010 facebook status updates.. So today I'll give ya my Oct 2010 status updates to this point.. Then everyone will be caught up on my life and hopefully.. I'll become a much better blogger again. :-)

Oct 1,2010
@9:13AM Princess woke up FEVER FREE!!!!!!!!!!!!!! 1st time since Monday... Yea!!!!!!!!
Now that she is feeling a little better(her throat is still killing her) it's time to got put her into pain.. Off to the dentist.. shudder, I can't stand going to the dentist.. my poor little baby girl...
@10:44PM DH is leaving for work at 3something AM. Princess has to be at St Paul for a 10am volleyball game by 9am, Mr Man has to be in Milan by 10am for his soccer tournament, Little Man has to be behind the middle school at 10am for his soccer game, and Sweet pea has to be there at noon for her soccer game.. There should be 4 of me..... That or DH's weekend OT needs to cool off a bit. We Can Do This.. Thanks mom & dad :-)

Oct 2,2010
@1:07PM So far 2 day Little Man team tied 6 - 6 he had 1 Sweet Pea team won 6-1 she had 3 Mr Man is still playing but tied the 1 game lost the 2

@ 2:23PM Sitting out in the cold rain waiting 2 c if Mr Man's team gets 2 advance or not

Oct 3, 2010
@8:17AM Mr Man's soccer team did advance and took 4th place in the tournament. Princess's volleyball won one and lost one yesterday. Now on our way to MI.

Oct 4, 2010
@9:15AM Ugh something is wrong with the Internet cable modem and i cant get online i need on line b 4 i meet with Annie doctor 2 get stuf

@9:17AM K the cell phone sent that 2 soon i was saying the stuff i need 4 the meeting with the doc is online in my email :(

@10:16AM Ugh they cant get the modem back online so they have 2 send someone 2 the house but wont b here till wed afternoon

@5:38PM Cable guy came :) nothing is wrong in my house :) still cant get online :( trouble is out on the line at the road :( so i wait

Oct 5,2010
@8:15AM Still not online :(

@6:57PM back online baby!!!!!!!!!!!!!!! :-)

Oct 6, 2010
@ 11:09AM very productive morning.. spent the last 3 1/2 hours dealing with PANDAS stuff for Sweet Pea, researching stuff making sure what we are doing and will be doing will help her and not hurt her.. Spent 30 minutes of that time on the phone with one of the PANDAS doctors from NJ. In the 30 minute phone call I feel I have learned more then I have in the last 6 months since we found out and started treatment. :-)

Oct 7,2010
@ 11:30AM I have spent all day Mon, Wed, and Thur dealing with doctors after doctor learning more stuff then I ever wanted to about PANDAS.. and while I feel informed I still feel confused, Please just keep praying for sweet pea this immune disorder is just crazy. In the mean time the house looks like a tornado has gone though it twice.. but I do have clean carpets(that was Tuesday) Guess Friday will be house cleaning day.

@ 11:58Pm Thank you Dustin and Luke for the pretty rock :-)
Little Man is calling it his pet rock and was holding it and hugging it alot tonight LOL He was very upset with me Tuesday when i cleaned his room, I saw a rock on his bed and I threw it away not knowing it was his old pet rock. So tonight you made a 5 year... old happy ♥

Oct 8,2010
@11:58AM today was my no doctor day so how is it It's noon and all I done today was more doctor stuff.. OK must got shower, get dress, clean up this place and get the kids from school.

@8:22PM Thought this was funny. Regarding
the mosque near ground zero, I say let them build it. But across the
street, we should put a topless bar, called "You Mecca Me Hot". Next to
that, a gay bar called "The Turban Cowboy" and next to that, a pork-rib
restaurant called "Iraq o' Ribs"? And a check cashing center called
......"Iran out of money" Lets see ...who's really tolerant! Repost if you
agree.

@11:14PM I'm sleepy... guess it's time for bed. I'm going to Princess's volleyball tourny tomorrow, DH is working, mom is taking the kids to soccer, then DH should be home to get Sweet Pea to softball and I may be back before Mr man does the putt, pass, Kick thing, but I really have no idea how long the v-ball will take.. Happy Saturday ya'll.

Oct 9,2010
@6:08PM Back from Rocky River.. Princess's v-ball team took 3rd. As for kids and soccer Sweet pea's team lost 1-4 and Little Man's team tied 3-3 he had 1 goal. Mr Man skipped soccer to go fishing on dad's boat today came home with 27 fish, now I'm off to go watch him at the football field... Later all.

@11:40PM Can't keep my eyes open any longer.... Good Night.

Oct 10,2010
@7:06PM Church, pumpkin patch, Lighthouse, Lake Side, Church, now dinner and in a bit a fire out in the yard to end the weekend.

Oct 11,2010
@11am I think I'm taking a break from loading photos for a hour or so :-) I still have the photos from the volleyball tournament, the punt,pass kick thing, and from our outing yesterday afternoon.. but I'm thinking I should go eat breakfast seeing how it's almost lunch time.

@12:28PM There has been reported a case of strep IN SWEET PEA'S CLASS ROOM.... I'm so scared for her :-( Since the child isn't in school today and it's Monday and the class has been empty all weekend, I'm not pulling her out of school at the moment, but if anyone ends up sick at all this week in her class I'll have to. Please keep her in your prayers.

Oct 12,2010
@ 8:19AM nothing like getting woke up at 1am by a crying 14 year old with a toothache. Still trying to reach the dentist with no luck, thought they opened at 8am. :-( Not only is she sitting here in Pain but she is worrying like crazy that she won't get to school in time to play in her volleyball game tonight.

@2:30PM I hate when a day doesn't go as planned.. I don't know why it bugs me seeing how most of my days Never goes as planned.. that being said.. here I sit not having gotten a thing done today, just being the Mom taxi back and forth all day long to school and doctors and dentist.. and it's about time to go get kids and head... to a volleyball game..maybe I should cook something quick so when DH gets home he can eat.

@8:26PM Freshman girls kicked butt in Shelby tonight... Way to go ladies. :-)
Tomorrow 8am speech for Little Man and then school for all 4 kids, 1pm dentist appt for Princess.(yes two days in row) So more running tomorrow but hopefully not as much as today.

Oct 13,2010
@10:48AM eating a early lunch, then off to my brothers to love on the twins, then taking Princess to the dentist.. later all

@10:09PM I'm on the ball tonight! I got DH's lunch packed 4 work. I looked at the kids lunch menu saw Sweet Pea & Little Man didn't like what they were having tomorrow. I got there lunches all packed up thinking how nice it will be not to have to worry about that in the morning.. Then it hit me.THEY WON'T be at school 4 lunch they ...will be at the dentist & I promised them McD's if they were good ~Sigh~ anyone want some PB & J's

Oct 14,2010
@11:04AM woke up with the worse back pain I have ever felt, it is so hard to move.. Icy hot, a heating pad and Alive were my best friends this morning.. OH my goodness just typing that makes me feel Old. It still hurts but I'm able to move a little. This I think came from sleeping in a bed with both Little Man & Sweet Pea.. OUCH...

@11:21AM Beside not being able to move without pain, driving to school was awful every time i had to use the break it sent sharp pain into my back. My sweet 5 year old says "I know what will help mommy" then he closes his eyes and said "Dear Jesus make mommy's back not hurt and don't let her die, Amen" :-) think he got the die part from me yelling "ouch I think I'm going to die if i have to use the break one more time" :-)

@7:57PM no school tomorrow, so all my children have left me tonight. Still don't get to sleep in though, Sweet Pea has a dentist appt in the morning for some work to be done.. OH MY.. So not looking forward to that.. Pray she is having a good day tomorrow or this could get interesting.

Oct 15,2010
@10:44AM Dentist went fine.. now she is back at her friends playing happily. Think Mr Man is having someone over tonight.. as for me not much planned just trying to get the house in order today..

@2:55PM I just don't feel like doing house work anymore today.. too bad it's not done yet guess it's going to wait because I'm done.

@3:29PM Way to much going on again tomorrow.. Princess has a volleyball tournament at the High School, Mr Man and Little Man both have soccer games at 9am, then at noon Sweet Pea has a soccer game and Little Man has a pizza party with his soccer team.. AND DH HAS TO WORK AGAIN... calling in the grandparents again. I need a few clones..

Oct 16, 2010
@4:22PM Mr. Man, Sweet Pea, and Little Man's soccer and Princess's High School volleyball is OVER!!! done for the season.. I'll have a bit of free time what will I do with myself

Oct 17,2010
Yesterday Princess hit her head while at the volleyball invite.. 8 1/2 hours later she was still dizzy, head still hurting and her vision was really blurry.. so Last night we made a trip to the ER and a cat scan was done.. mild concussion.. Yet everyone keeps LOL at her.. while she did this at the invite.. she didn't do it... it playing.. She walked into a pole. LOL.. ~sigh~ that's my girl.

AND TODAY
@9AM 2 youngest R home with me today. both with tummy issues and not feeling well.. YUCK... Guess I'll do more laundry and get some work done around here today,Since it seems I'm stuck in the house today.

@10:30AM ‎:-( Oreo our kitten was just hit and killed by a car..
Sweet Pea and Little Man are not taking this news very well at the moment.

Facebooking my blog

I never seem to find the time to keep up my blog the way I use to, and the way I want to.. and I always think I'll go back and make up for this.. but I never do..
I had this idea that I should go back a month or so and copy and paste all my facebook updates into my blog, This will do two thing..
1) let me sort of keep the memory of what was going on, here forever in time and
2) give you my loyal readers(LOL yes all 1 of you who are left) and update of what has been going on without me having to find the time to write it all out..
So here ya go.. my facebook status updates from Sept 2010

Sept 1, 2010 Thinking it's too hot to go to soccer practice today, Wonder if the kids would notices if I just don't take them

Sept 2, 2010 @ 8AM Work and Volleyball that is the plan for today.

Sept 3, 2010 @ 6pm two younger ones went to spend the night at grandmas, about to take the two older ones to the football game... Good Luck Truckers!!!!

Sept 4, 2010 @12am after working and planning and thinking about this with every free moment I have.. I can safely say that after I pick up the paper work from Sweet Pea's doctor I'm 100% ready to go into this 504 meeting. NOW IF ONLY THEY WOULD SET IT UP!!!!!!!

@ 9am woke up cold this morning... I think I like me this fall like weather. :-)

@ noon my hubby keeps spoiling me with totally unhealthy very fattening but extremely tasty food this week.. Lunch today hamburgers with cheese and bacon and loaded potato skins with Cheddar, bacon and sour cream... YUM!!!!!!!

Sept 5, 2010
@ 8:30am Church then off to NL I think is the game plan for today, Though not 100% sure if I'm heading to NL right after church, might come home 1st stop by Lennys and then head out that way.. who knows..

Sept 6, 2010
@ 12:45pm must do dishes and finish up the laundry, then pick up a van load of kids and head to New London for rides, fair food, and fireworks...

Sept 7,2010
@10pm It is so nice outside tonight I could sit out there all night long.. POO to having to go to bed and waking up early... Bring back summer..(and keep this weather lol)

Sept 8,2010
@8 AM Work, Doc appt for Sweet Pea, Then Soccer practice for Sweet pea & Mr Man, and will finish up the night picking Princess up from youth group.. and somewhere in there feeding, bathing and doing homework with the kids.

@ 4pm The hubby has been called back to work.....:-)
He has been home since June.. he goes back Monday....
I'm happy.. but oh my goodness I have been use to having him home and using him as my babysitter.. now what am I going to do LOL

Sept 9, 2010
@ 4:05PM UGH.. heading off to the doctor with Mr Man here in about 30 mins. He has been coughing and complaining about a sore throat for two days now.. No fever But with Sweet Pea and her issues I HAVE to take him in to be tested for the strep.. Praying it is NOT strep..
@ 6:35PM No strep.. :-)
Now I'm off to the meeting at Mr Man's school.. Later all.

Sept 10,2010
@ 12:06pm Trying to explain to the hubby, why we need a new couch.. Yes I agree it is extremely comfy and long enough for him to sleep on.. and I love that the two end are recliners and that there is a fold down table with cup holders in the middle.. BUT It is faded, worn and every cushion is torn and has holes in them... It's time for it to go...

Sept 11, 2010
@12:02AM Why am I still awake??? I have to have Princess at Volleyball at 8:30am have Mr Man at his soccer game at 8:30AM, Sweet Pea at her soccer game at 8:30am and Little man at his soccer game at 8:30am... Yea I haven't figured out just how we are doing all this yet.. but I do know I need to wake up early tomorrow.. So I should go to bed.. Night all.

@ 12:35 PM Mr Man's team won 7-0, Sweet Pea's team won 6-2, and Little Man's team lost 5-4 BUT Little Man scored 3 of those 4 goals. So he is very pleased :-) Princess still at Volleyball and Sweet pea has softball at 3. Busy day and I need to do laundry and clean the house.

@ 11:50PM Please put this on your status if you know someone (or are related to someone) who suffers from stupidity. Stupidity is a real condition and should be taken seriously. You could be sitting next to a sufferer right now. There is still no known cure for stupidity, but we can raise awareness.......... 93% won't copy and paste this... because............... they don't know how to copy and paste. Will you?

@ 11:58pm Mr man is sick and can't stop coughing to save his life... not only is he not going to get sleep tonight.. I don't think the rest of us are either. :-( I have given him everything I can and he still can't stop coughing.. blah..

Sept 12,2010
@ 2PM Mr man still feeling sick, no fever, but he has chills and still coughing alot. Kept him home from church this morning in hopes that whatever is going on will be gone tomorrow because DH starts back to work in the morning and I still have this week left of the sub job I'm doing So pray he is well tomorrow so he can make it to school.. and that he doesn't pass this lovely stuff around to the rest of us.

@ 10:26PM tomorrow should be interesting. DH goes back to work after 3 1/2 months off and on 1st shift don't remember the last time he worked days.. Plus not only is Mr man not feeling Well Sweet Pea is now complaining her throat hurts.. hope she is better in the morning or it's right to the doctor with her. :-( In happy news I got... to spend time with my favorite twins today :-)

Sept 13,2010
@9:07PM Back from High School Open House.. Princess seems to have alot of good teachers. In other Princess news The Freshman V-ball team lost there game this evening :( 1st lose of the season. In more exciting news Princess made homecoming court :)

@ 11:57PM blah.. I need sleep.. come morning and working with preschoolers I'm going to hate the fact that I'm still awake. but have so much running though my head.. antibiotics, probiotics, symptoms days, Doctors.. I hate that my little girl has to deal with P.A.N.D.A.S. :-(

Sept 14, 2010
@ 8AM Morning all.

@ 4:38pm I'm so tired.. I could climb in bed right now and sleep until noon tomorrow. guess that isn't going to happen.. guess I'll go cook dinner.. Princess is at v-ball, later Mr Man has soccer, and I need to help Sweet Pea study for her SS test.. and get Little Man bathed and in bed early since he has ST at the hospital at 8am before heading to school.

Sept 15, 2010
@5:30PM Hahahaha i just won a staring contest against Jensen cat Hahahaha


Sept 16,2010
@ 6:20AM Good morning, good morning!
Good morning, good morning!
Good morning, good morning!
There will be no yawning!

@ 5:15PM O man :( im at Princess game and the camera batteries just died

@ 7:31PM Time to figure out what is for dinner,cook it,eat it and get some kids ready for bed.
Princess team won 27-25 and 25-18

Sept 17,2010
11:24AM The plan clean the whole house and do laundry today. Tomorrow MrMan soccer at 9am, Little Man's at 10am Sweet Pea's at noon. Princess has a volleyball game at 4:30pm @ Edison. Sunday afternoon Princess has 2 softball games and sun night is the start of awanas.. busy weekend

Sept 18,2010
@ 1:37PM Mr Man's team won 4-1, Little Man's team won 7-3, Sweet Pea's team lost 3-0 now it's lunch and off to Princess's volleyball game. Happy Saturday.

@ 3:30PM ya know a few hours ago I sent a FB status via cell phone and it never showed up here.. HUMMMM wonder what time it will show.. in any case.. Just dropped Princess and Sydney off to get on the bus.. In a few I'll be heading to Edison for the Volleyball game...

@9:58PM very very very tired.. 3 soccer games and 3 volleyball games, well I guess 2 1/2 I left before Varsity was over. anyways..I'm tired.. and tomorrow I have to drive to Cortland for softball.. and back and then church and Awanas.. I'm going to be dead tired tomorrow night.

Sept 19,2010
@9:59 PM wonderful day. loaded the van with 6 kids drove 2 hours to Cortland, dropped the 3 who were playing ball off took the 3 who weren't to a fun playground went back to watch 2 softball games, lost one 8-2 then played the same team again and won that one 4-2(Princess pitched that game) drove back home got back just in time to... wash hands & faces headed to church, youth group and the start of awanas. I'm off to bed.

Sept 20,2010
@ 4:40PM Not been a good day for my little girl :-(

Sept 21, 2010
@4:47PM one more day of this what 4 week sub job.. and then I'll get some facebook time.. though if you saw all the games my mom have been playing on my site you would think I have done nothing but play all day anyways LOL.

@6PM Just found my Ipod at the bottom of a sink full of dirty dish water :-( don't ask.. I don't know.. not a clue who used it last or how it ended up in the sink..

Sept 22, 2010
@9:21AM not doing the sub thing today :-( I feel awful having to call off, but Mr Man is home sick with a fever and Sweet Pea was having PANDAS issues this morning again and now she is feeling sick herself. blah blah blah..

@ 6:08PM BBQ pulled pork I did in the crock pot, mashpotatos, corn, mac n cheese, and corn muffins... YUMMMMMMMMMMMMM dinner was good :-)

Sept 23,2010
@10AM All the kids are in school today, here is hoping I don't get any calls saying I need to pick one up.. After dropping them off I went and had my hair cut, it needed it bad.. now on to cleaning the house and figuring what's for dinner. Later is Princess's volleyball game..

@1:41Pm greys anatomy is on tonight.. I'm excited....

Sept 24,2010
@8:25AM drop kids off at school, do a load of laundry, then go play with the my little niece and nephew..
@11:59PM Way to busy of a day tomorrow.. night all

Sept 25,2010
@9:25AM sitting at Sweet Peas game next 2 a man who has stopped talking and all he is doing is complaining about every under the sun

@ 2:30PM Sweet Pea's team lost 3-2, Mr Man's team lost there 1st game ever today 4-3 and Little Man's team won 7-0 and Little Man made 4 of those goals. After soccer the boys went to my parents, Sweet Pea was to have softball, ONLY she isn't doing well again :-( So no softball for her.. Homecoming for Princess later this evening.. hoping to get a few good shots of that..

Sept 27,2010
@12:27AM two homecomings out of the way.. now I'm going to bed.. I'm not feeling very well blah..... so not looking forward to the alarm going off at 5am(for DH) and again at 6am(for Princess) and 7am for the rest of us... night all.

@8:06AM OK sleep seemed to have done nothing for me feeling sick. :-( Thinking my plan today is nothing.. or as little as I can get by with.. this is not a good feeling..

@5:18PM this day hasn't gone at all as planned and i still feel crappy :(

@10:40PM spent my day getting the last of the paper work ready for the 504 meeting for Sweet Pea tomorrow.. Taking Princess to the doctor with strep like symptoms and a 102 fever, and then over to the hospital for xrays on her foot, since we were at the doctors I had them look at her foot and they thought she needed the xrays.. Rap...id strep test was Neg.. and won't have the results of her foot till tomorrow..

Sept 28,2010
@ 4:47PM The 504 meeting went ok today.. Thought it went well till I opened my email a little bit ago and found an email letting me know they need more stuff from the doctor.. Thought I had enough paper work from both her doctors.. guess I'll be making another call into the doctors office to see what we can do..

Sept 29,2010
@ 7:45AM ‎4 hours of sleep is really just not enough.
@10:53PM God is Good!!!!! been in contact back and forth with the school today and I think this 504 thing is working itself out.. Just need to run a few things by Sweet Pea's doctor and I think we are all set good to go. Bad thing is there is already a known case of strep reported in the kindergarten... hummmmm... might be time take Little Man in to be checked and Princess rechecked.

Sept 30,2010
@5:15PM Today started the day at the doctors with Princess, Then came home and steam vac. the living room, took the fall softball shirts over to have numbers put on them, stopped at walmart to pick up some stuff for sick kids, then over to CVS to pick up perscribtions, came home made lunch, then went over and helped my grandma watch the twins from 2-4:30pm about ready to leave for Mr Man's 2 hour soccer pract. which starts at 5:30

@10:21PM I can't stop sneezing...

@11:22PM Night all.. tomorrow holds much of the same for me.. starting the day dropping off kids at school, then if Princess doesn't have a fever will be taking her to her dentist appt in the morning, then coming home and cleaning the carpet in the dinning room.. and who knows what more after that.. maybe go get my baby fix helping with the twins again :-) though I should start on the bedrooms but what fun would that be.


And there ya have it ya'll every single facebook status update I made in the Month of Sept 2010

Tomorrow I hope to do a weekend recap and then on Tuesday Maybe do a facebook update thing for all the stuff I posted in Oct.. and that should bring us all up today.. Then on Wed hopefully do a wordless weds of Princess homecoming pictures.

Weekend Recap Sept 24,25,&26,2010

WOW when was the last time I did a weekend recap????

Friday Sept 24,2010

All my kids went to school and I did not have to work. This seemed weird to me.. I spent the early morning touching up the cleaning around the house and doing laundry, Then from 10:30am-1pm I headed over to my brothers house to play with the two cutest twins in the world, My 2.5 month old little Nephew and Niece..(pics from that day will be my WW post this week)

After that I came home ate lunch and got ready to get the kids from school

Once they were home I had to run to the store and buy snacks for 3 different soccer teams, and then feed everyone dinner.

After Dinner I drove Princess and her two friends to the homecoming football game, when I got back DH took Mr Man to the town we grew up in football game while I stayed home with Little Man and Sweet Pea.

The three of us brought out sleeping bags and Pillows and had a movie night in the living room. We watched Marmaduke. Cute show the kids had fun with it..

both the younger two were asleep before DH and Mr Man got home, and Princess spent the night at her friend S.F. house..

Saturday Sept 25, 2010

This was going to be one crazy busy day. DH had to work and he left the house at 5:30am leaving me to deal with the crazy.

We had to be up and out the door around 8:30am, we left more like 8:45am for a 9am soccer game for Sweet Pea,

Then at 10:30am Mr Man had his soccer game

and in the middle of his game we had to get Little Man to his soccer field for his 11am soccer game..

PLUS it was ALL THREE of there snack day(don't ask me how they all ended up on the same day) but it sure made alot of stuff to remember and carry that morning. fter soccer, Princess had to get her hair done for the homecoming dance and get dress.. and I had to feed everyone lunch and then leave by 2pm to have Sweet Pea at her fastpitch travel softball practice which was an hour away.. This is where DH was going to meet me after work and as soon as he got there I was going to book it home to be back JUST in time for the 4:30pm homecoming pictures for Princess.

ONLY how it worked out was after Sweet Peas soccer game she started having PANDAS issues which I wasn't sure how bad they might get but we stayed and she worked through them for the rest of the soccer games, my grandma ended up being the one to go with Princess to get her hair done, and my Parents took the boys to spend the night at there house, While I stayed home caring for Sweet Pea.. She ended up falling asleep and sleeping a few hours in the afternoon and after she at a tiny bit of lunch. I called her softball coach and told him she wouldn't be there and then called DH and told him to head home after work not the ball fields.. DH got home from work at 4:15pm and I took off to meet up with Princess who was getting dressed with a group at her friends house.. and then the big group of them meet up at another friends house so we could get pictures. hen I got home Sweet Pea was back to her normal self, her brain was no longer under an attack.. and she wanted to go spend the night with my parents also since the boys were.. So I packed her up and drove her over there.. I got home around 7:30pm and DH and I ate dinner together.. he was extremely tired (worked 56 plus hours this week and last) and He was in bed by 9pm and asleep by 10pm...

I waited up for Princess to come home from the dance.. after she did she and her friend S.F. went back to the friends house to spend the night. and I went to bed.

Sunday Sept 27,2010

Got up got dressed, picked up Princess from her friends house drove back home picked up DH and headed off to church.. After church Sweet Pea and Little Man wanted to go back to my parents house to spend the afternoon, DH and Mr Man took off had lunch together, got an oil change in the car and picked up groceries and on there way home picked up Sweet Pea and Little Man.. They were gone till about 4:30pm

I got home after church Princess washed and dried her hair, then she and I went and got her hair all dolled up again, got her make up on and got her back into the homecoming dress, ate lunch somewhere in there also.. At 4pm we were off with another group of her friends who attend a different school for there homecoming dance, Princess went with a boy who is one of her friends who asked her.. They are ONLY friends, she went to her homecoming dance with an upper classman who likes her.

After getting her pictures I came back home and went over Awana verses with the kids, then it was off to PM church and Awanas.

After church feed the kids dinner let them watch tv a bit and then got them in bed.. Just in time for me to watch Desperate housewives and Brothers and Sisters, when that was over I had to go pick Princess up.. and I headed off to bed with a book.. and ended up reading till 1am.. So I'm just a tad tired today and I think I have a sinus infection which is never a good thing.. blah..

So there ya have it folks how I spent my weekend... busy as always..

I'll try to post the homecoming pics tomorrow it's it's own post..